All Discussions (2947)
WHY ISN'T THERE A AWARNESS RIBBON FOR VITILIGO ???????????
There's lots of other organizations who have ribbons that support their causes, Why don't we have one for Vitiligo ????????
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UVB-NB phototherapy treatment--is turning pink okay?
Hi,
For those of you doing narrowband UV treatment... Are you supposed to let the vit areas turn pink? Or does that mean you have done too much and you should reduce the uv exposure?
My 13yo daughter has vit on her forehead, eyebrow and eyelid.
Read more…Vit Advice
Hi All, This is my first post here. Ive been diagnosed with Vit for a month and I was wondering if there was any advice for a new Vitiligan?
I see so many people at peace with themselves and just happily accepted Vit as a part of themselves. How d
Read more…is it normal to feel extremely sad?
i got diagnosed at the beginning of the summer but i still cry a lot and i feel really sad when I'm not thinking about other things. does everyone feel so upset or am i depressed? :((((
Read more…For those who use sunlight therapuetically...
Hi all. New here. Nice forum, nice people.
I've read that vit B-12, plus folic acid, plus sunlight can help re-pigment. I'm very interested in trying this.
Question I have is - since we have no protection against sunburn, how much sunlight is en
Read more…Mon vitiligo
Bonjour les amis,
Depuis le temps que j'attendais ce rendez vous à l'hôpital , je l'ai eu. Cette docteresse très gentille ma bien expliqué, regardé avec la lampe, ma assuré que sous les yeux les 2 taches blanches ne sont pas du vitligo, au contour de
Read more…How did you feel the first time you got diagnosed with vit?
I remember riding my bike to the doctor's office on July 17th 2011, exactly 1 month ago, and hearing for the first time: "You have vitiligo".
I cried so bad that day and while on my way back to my house i got off my bike cause i was scared I'd kill my
Stong emotional reactions related to Vit?
So, im hispanic, and a lot of my family's friends or even just mexican doctors have told me that my vitiligo was triggered by a STRONG emotion. I noticed i had vit during that last days of my 4th grade year, earlier that year, my parents were going t
Read more…STEVE YOU STARTED A GOOD THING HERE I HOPE IT GETS BIGGER AND MORE POPULAR.!!!!!!!!!!
I THINK YOU SHOULD BE CALLED ST.STEVE (SAINT STEVE) FOR BRINGING SO MANY PEOPLE TOGETHER WE WERE ALL STRANGERS WITH SOMETHING IN COMMON (VITILIGO) AND NOW WE ARE ALL FRIENDS AND THANK YOU ONCE AGAIN STEVE BECAUSE YOU STARTED SOMETHING GOOD HERE AND I
Read more…Protopic use / results?
We are interested in hearing from parents or others about protopic use.
Thoughts, results ?
We are thinking about trying this on our son and would like more info.
Read more…I am thinking of doing skin graft to help my vitiligo. Has anyone tried this method or know someone who did and it works?
I am thinking of doing skin graft to help my vitiligo. Has anyone tried this method or know someone who did and it works?
Read more…Boost
Has anyone tried de nutrition named BOOST. It is from a company in th UK named Proto-col. I found it at a website www.vitiligoprotocol.co.uk
Read more…melonocytle transplant
Has anyone had this procedure done or know someone who has? I understand Henry Ford in Detroit is the only hospital in the nation taking part in this potential "cure". Hard to imagine only one hospital in the US is doing this...evidently they are h
Read more…My life changing story and what I enjoy now. Want to share your hobbies, activities and passions?
After I came to terms with my childhood issues including vitiligo issues, I was freed up to enjoy several creative passions. I was inspired to write poetry. I joined a poetry group and we published a book of our poems. I found a church home and devel
Read more…Vitiligo Caused By Migraines?
Hi, here I go again with my "what-ifs" but I refuse to be content with the usual, "no one knows why it's triggered, it just is." I know that all of us must have some deficiency that makes us prone to vitiligo but that's not good enough for me. To ma
Read more…Does Anyone Think being anemic can worsen vitiligo?
I've been anemic my whole life and i was looking up the symtoms of anemic and it says pale skin. I wonder if it has any relation to the vitiligo. Anybody?
Read more…Screw this.....unrealistic expectation on women.
I can speak for many women around the world who have pent up anger, frustation and many other feelings ready to explode with the current state of unrealistic expectations on women. We are asked to be presentable at all times, be fit, be thin,shave yo
Read more…good news for vitiligo sufferers
Here i m to give u a very good news that one product is really effective for vit.patients.I have started using it since 15days only and to my surprise repigmentation has started.all that i want is to convey this message to as many people who are suff
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