My 5-year old little boy was diagnosed with Vitiligo yesterday - I actually noticed a white patch on his back over a year ago but I stupidly assumed it was a birthmark and that it was getting bigger as his skin grew along with the rest of him. The sp
Read more…What do you do when people stare at your child? It happened for the first time this weekend. I need to wrestle with this myself for a bit before I figure out what to tell my daughter to do/say. She didn't notice the woman staring at her. But that
Read more…My daughter is 6 years old and has had vitiligo for 2 years. She copes so well with it and we have never shared with her what she has. I feel like we can't hide it anymore and she needs to know what's going on. My husband and I want to sit down an
Read more…My daughter Lyndsay will be starting all day kindergarten in September. Does anyone supply the school nurse with sunscreen to be applied on their child for recess or outside gym? I have to get a note from the doctor to do this, and am wondering if
Read more…does protopic work ? is it good for spots? in our case it seems to work only on face.we are using it for a patch on leg. the pigmentation came back but again its losing color. my kid is just 3.
Read more…Has anyone given their children certain herbs or vitamins that have worked? Any natural remedies?
Read more…Do any of you parents use a cover up with your children? I found this organic self tanning lotion that I was going to use on myself. The thought occured to me that my daughter if she chooses to can use this down the road. My daughter is only 6 and
Read more…I have been reading that Ginko Biloba has been found to be somewhat successful in treating or arresting further growth of Vitiligo. I have Vitiligo myself and have started taking it, but have not seen any changes. Now that my daughter has started to
Read more…My 18 months old son has been diagnosed with vitiligo 3 weeks ago. It seems to be spreading very aggressively and his tummy and groin are depigmenting very quickly. He has also one patch on his eyelid. We took him to see the 3/4 guys in europe that s
Read more…Dylan came to me yesterday saying he was upset that so many kids at school were asking him about his eyelashes. He has vitiligo around his eyes and his eyelashes on one eye are white. Some of his eyebrows are turning white also. His eyelashes are alo
Read more…Houston, TX support group meet-up
When: March 12, 2011
Time: 1:00 pm
Where: Cafe Adobe in Sugarland
Why: support and meet others with vitiligo some attendees were diagnosed at a young age
Hope you can join us!
Read more…My daughter is only five and has started getting gray hairs on the back of her head. Her derm said vit can do this but ignored it mostly because his attention was on her spreading spots on her face. But what I am curious to know if anyone else has
Read more…Reaching out to the group to obtain experiences with vit on lip.
How does it start ? does the red lip for kids become more reddish and then loose pigment ?
Or, will it go from the natual lip color to white stratight ?
For my child, the lip is b
Read more…I was wondering if anybody could recommend a good cover up cream for my son. He is 11 and for the first time in two years since he started with Vitiligo he wants to cover his spots. I bought Dermablend but it does not look natural at all.
Read more…Emily's derm recommended this new laser treatment that they are getting in their office. She said it has had great results repigmenting skin. She wants us to do twice a week treatment and says it's much safer that regular light treatment because it
Read more…Hello all parents
How do you help your child to feel as positive as possible about their vitiligo and to explain it to other children?
All has been fine for my son at his school - his friends accept his white patches and no longer comment on his vitili
Reaching out to the group requesting to share their experiences with the usage of Protopic on toes. We got good success with protopic (augmented by mild steroids for short times, depending on the location) for our 9.5 old daughter at various places
Read more…did u had a skin biopsy done or just a visual examination to confirm vitiligo ?
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