Comments

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  Christie December 4, 2011 at 1:16pm

  Thanks!! We are using in combination with Protopic. We are building up time still. His hips get pink at 2 min 45 sec. We are at 3 minutes everywhere else, but no pinkness, so will slowly be adding more time. I have heard it can take up to 5 minutes for the hands and feet to turn pink, so we will see. We are very excited with the results. His knees are almost 90 percent repigmented with just Protopic. Good luck with your little sweetie!
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  Becki August 1, 2011 at 10:36am

  I have always noticed a lot of growth in the summer months when it is hot outside.  I asked my derm about that and she said there is no study that supports that, but in my experience, new spots do show up after sun exposure, or perhaps heat, I'm not sure which.  Protopic can take a LONG time to work... months and months.  I have experienced good luck with it on the face, repigmenting more than one facial area, but no place else really.  I honestly only treat her face now as she has so many spots everywhere else, I would practically have to coat her in it head to toe and I'm not willing to do that!  Others have also reported only limited success in treating hands, feet, knees etc.  Be vigilant with it and don't stop.  For us, the winter brought no more noticeable new spots, or very few.  And the other nice part about the winter is we wear more clothing!  I have joked that we could just move to Alaska!  Make sure he is taking a vitamin with zinc, copper, pantothenic acid and folic acid... as well as the other goodies that are normally in a childrens vitamin. 

  Hang in there!  I know it is just heartbreaking to watch your childs skin change like it

  does, acceptance is very hard with vitiligo.   I have just gotten to the acceptance phase of this, and Paige was diagnosed over a year ago.  And when I say I accept it, that does not mean that I have given up any sort of fight for my daughter.  I just know that this will always be a part of who she is, and it's okay.  She is perfect just the way she is.  I now have to teach her how to care for her skin, how to answer others' stares or questions, and how to be the great person I know she is capapble of being, despite some spots on her skin!  I think our reaction to this, as parents, can be paramount in that process for our kids.  I certainly don't have all the answers to that, but I'm going to try!

  Becki
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  Natalie Duy July 29, 2011 at 2:41am

  Your kids are so cute! :]
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  Chris July 28, 2011 at 9:12am

  Thanks for the friend request....My Facebook is http://www.facebook.com/profile.php?id=100000139925515 . if you would like to become friends their.

   
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  Mustafizar Salleh July 23, 2011 at 10:16pm

  Thank You lia forcina :)
  
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  Christie July 16, 2011 at 6:00am

  We are actually in the process of getting a hand held light system.  We are waiting to see if insurance will cover any of the expense...if not, we are just going to buy it.  Hoping we will see better results with the light!!
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  Christie July 15, 2011 at 10:13am

  My son is 9.  He was diagnosed last summer.  We are currently trying protopic during the week and steroids on the weekend.  He has a couple os spots that are repigmenting quite nicely.  Keeping my fingers crossed!!
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  Nadika July 3, 2011 at 4:16am

  Hello and Welcome !!! Glad you are here !!! :) :) :)
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  Cawan July 2, 2011 at 7:34am

  HELLO AND WELCOME TO VITILIGO FRIENDS!!