Comments

• 

  Lily March 28, 2017 at 3:50am

  Parents,
  
  Houston Vitiligo Awareness Movement
  Saturday, April 8, 2017 (3p-6p)
  The Preston Theater
  2201 Preston St.
  Houston, Texas 77003
  
  
  www.houstonvitiligoawareness.eventbrite.com
  
  We will have a pediatric dermatologist present information. Hope you can make it!
• 

  Andrea Coppola June 14, 2016 at 3:19pm

  Hi,

  my son is 5. He developed vitaligo when he was 3. he has a large white spot in the genital area which reaches his belly button and a small one on the knee. he started asking me about his white spots, also because it is almost a year we treat him with creams. so far, he is just curious about it. He is going to start school in September and I want to provide him with a clear explanation so he can use it with confidence if other kids ask him about it.

  I would very much appreciate any suggestions based on your experience of being parents of kids with vitaligo or being people with vitaligo who already went through their childhood. What is the best thing to say, especially taking into account that a kid will use the same explanation when he is asked about it?

  Thank you,

  Andrea
• 

  Cristina Cortez VILLEGA November 22, 2015 at 2:25pm

  I stopped consuming sour foods including fruits,mangoes and pineapple and my Vitiligo stopped also.no creams or lotion or anything and see repigmentation but a bit slow. .
• 

  Robot October 24, 2015 at 4:58pm

  Spend some time and read the possible vitiligo triggers and causes at:  www.vitiligomap.com

  Btw, a good suggestion is to follow a Functional Treatment.  Find it at:   www.vitiligomap.com/protocol.html
• 

  Sonia October 24, 2015 at 12:19pm

  I think my family got unlucky that 2 of my 3 kids have vitiligo.  Somewhere I read that if a parent has vitiligo, the odds of one of their kids having it was 5% ... but don't quote me on that!
• 

  Lisa October 24, 2015 at 12:01pm

  Thank you Sonia. Is it possible my 3 yr old may get this as well?
• 

  Sonia October 24, 2015 at 9:31am

  Hi Lisa, autoimmune disease can be genetic.  I think my daughters have vitiligo because I have thyroid disease, as do members of my husband's family.  Vitiligo and thyroid disease often come together (in fact, one of my girls also has Hashimoto's).  I backed away from the creams because for one of my girls, the vitiligo exploded all over her body with the onset of puberty, and it was not realistic to slather her with cream everywhere.  Personally, I treat vitiligo as an autoimmune disease and not a skin disease (Derm's know precious little about autoimmunity).  I suggest researching "leaky gut" and take a look at "the paleo mom's" website.  You can also google "vitiligo and gluten" and see what you think of that.  All the best.
• 

  Lisa October 24, 2015 at 9:02am

  If it is genetic does that mean it's not an autoimmune? At the time of our visit I did not know that my husbands aunt has it on her legs. They did not do bloodworm just looked at the spots and said it was vitiligo.
• 

  Debbie daruwalla October 24, 2015 at 8:20am

  Hi. My 6 yr old son was diagnosed about 4 months ago. The dermatologist has prescribed tacrolimus ointment 0.1 and a mild steroid cream. He then changed the steroid to a slightly stronger one. His patches are on his cheeks eyelids legs and hands. After 4 months, his hands and legsare developing more patches slowly but surely. On the other hand the patches on his face are getting their colour back equally slowly and surely. He takes a multi vitamin syrup and I try to restrict his gluten intake which is difficult since he loves bread! Oh he also needs to be in the sun 15 min a day. I'm not sure what exactly is working. But I'm thankful to see some iimprovement on his face at least. Does anyone have any tips on how to reduce stress in kids? My son is very fearful and reacts extremely to situations. Very happy or very angry. I worry that this nature increases vitiligo.
• 

  Annie Carignan October 24, 2015 at 7:12am

  No one know for a fact what is causing Vitiligo, if someone is telling me that he knows exactly what to do to help it, I'm gonna run. We tried to change the diet, we tried supplements, we tried the supposedly magic little cream from a naturopath with no real success. So for now on, we are just dealing with it, we are positive about it, we are not making  a big deal about it with our daughter. At the really beginning, we were on a panic mode, I made so many changes in our diet and stuff that I think I was causing more harm than good, it was too stressful for her. We finally find our balance with her vit, it is not stressful anymore, it's not even a big concern, and more importantly we are in peace with it. I passed so many hours reading everything on this site, and to be quite honest, there is no magic way to get rid of it, something who seems to work for one, won't have any success for the other one. I don't really come here now, I am  kind of tired to hear that the doctors no nothing and  the naturopath know more, it's not true, NOBODY know. At least the doctors are honest by saying they don't really understand this condition, they give you few options, but they don't pretend that they will get your vit to go away. One derm told me one day, I would LOVE  to tell you that it's all related to the digestive track and you just need to change your diet, but nothing right now, no serious research, is showing it to be true.