Hello, I am gathering information on how to start a Vitiligo support group in Wisconsin. The focus would be on educating loved ones about the disorder, and a place where people can come just to be them selves can anyone give me any pointers on start
I am reading this incredible book called "Dying To Be Me" by Anita Moorjani. She talks about her Near Death Experience NDE. Her body was ravaged by cancer which she feels was caused by lifes events and what she herself put her own self through. Dur
My 11 year old daughter is due for a meningitis and Tdap vaccines. I know there has been discussion about the flu vaccine and triggering or worsening vitiligo, but does anyone not get the recommended vaccines for fear of this as well? We have had a
Hi all,
After many years of trying seek the right medical treatment for Vitiligo, I've come to the conclusion of doctors lack knowledge although some doctors know what Vitiligo is there isn't doctor out there who can possibly say I can cure this ski
I have an appointment with my dermatologist at the end of this month. I understand that for some here it is difficult, if not impossible, to see a specialist. So, I would be willing to take questions you have and ask my Derm. I won't be
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So I graduated high school this month (Amen for that). I was diagnosed with Vit and Hashimoto's Thyroid the day of my Senior Prom and the Vitiligo has been progressing ever since. I have two large patches around my eyes, my top set of eyelashes are n
I was diagnosed with vitiligo in 1988 at the age of 10. I received one type of treatment in the form of a skin dye that was used for maybe two weeks until I decided to quit the treatment because I felt it was not helping. My vitiligo progressed throu
My name is Jennifer and I am a mother to 5 y/o Jack. Jack was just diagnosed with vitiligo a few weeks ago. I noticed some spots around his mouth a couple moths ago and they seamed to get darker and darker. I finally took him to see hi
The National Vitiligo Foundation is looking for a woman who was recently (within the last two years) diagnosed with vitiligo to appear on a NATIONAL TELEVISION SHOW to help RAISE AWARENESS of this condition. She must live in NYC and have vitiligo on
I hope I am not being presumptuous in naming you all such, but here's hoping. My personal experience with vitiligo began about 7 years ago. That was when the first spots began to appear on my left arm. I was initially diagnosed wi
So for the first time in my life I met someone else with Vitiligo today!!!! I was in the nail salon having a pedicure and the lady doing my nails asked me what the spots on my ankles were called. I told her it was called Vitiligo and the woman sitt
Having a little bit of a down week, my feet have been taking off this months and are changing rapidly. A man I used to know asked me "what happened to your hands?" and I explained he then followed with "that's a shame you used to have such beautiful
We have been using vitiligo on my son's leg for a year now. The dermatologist suggests we use it from April until October when the sun is out the most. Is this typical? I really haven't seen a difference at all. I questioned her last week as to
I've had vitiligo for 42 years .
I thunk that 90% of my body has been effected by this disease.
I only have about five major areas on my face that still effect me emotionally praying they they hurry up in lose they color.
My concern is that I notice