I was diognosed with vitiligo just over a year ago the only treatment i have had is a cream that did nothing. I have noticed that slowly more patches are appearing even tho no one else notices them i am really aware that they are there. At the mome
Growing up I always wanted to become an actress but of course Vitiligo & Psoriasis got in my way but now I wonder if Hollywood is looking for something different and unusual. I'm pretty good at acting and I have all of the self confidence for it. I w
We've just published the first two videos in a four part series featuring Lee Thomas and our CEO, Dr Philippe Wolgen, discussing the company's vitiligo program with the drug SCENESSE® (afamelanotide). You can view these on our website:
I just started doing research, and found out the B-12 suppliment I am taking contains cyanide! Has anyone done any research on this? What B-12 do you take?
Not sure where to go from here, I found this supplier:
people living near Massachusetts, has opportunity to help in the development of the Simvastatin to Treat Generalized Vitiligo,the drug is in the Phase II trial now. They are recruiting patients , below is the link to the site and it has all
I went & saw my dr on tues and my vit is in the middle if my forehead & goes to my left eyebrow. Well the good news is that the pigment is coming back on my forehead, it's starting to "bud" which is very exciting, this is from using protopic and deso
Just wanted to say hello to everyone out there (: I have recently been diagnosed with this and only have it in my hair and the doctor can't tell if its affecting my skin yet. I have been around this all my life with my great grandmother (rip) and gra
I have had vitiligo ever since I can remember, I think it started when I was like four. I only have it on my right knee. At first it was just a white blob on my knee I remember trying creams and stuff for a while but stopped.
Hello, please visit the fundraiser page to raise money to donate to Vitiligo research for a cure and push or doctors to investigate more about what really causes vitiligo. As we all know , vitiligo doesn't get priority for research like other disease
I found out that I have vitiligo about 3 months ago. I have since then been on protopic and one other cream. I have found that either medication are working, in fact I think they are making it worse. As of right now I just have the vitiligo right in
I was diagnosed with vitiligo just a short while ago (about 1.5 months) and while I know there is no cure, the one thing I've been holding onto as helping the most is light therapy. My dermatologist ordered the therapy, and a pre-authorizati
Hi all! Let me just say that this forum is really and truly a breath of fresh air compared to some of the sites i was researching on before. So, thanks for that :)
OK... So a little about me: 24 years old, healthy diet, fairly active and generally a
I've trying to been look up foods that can help prevent future spread of vitiligo & stuff like that, but all the websites I have found haven't been telling me anything, so does anyone know what foods would help & what foods to stay away from?
Hi I am Tiffany, and I have vitiligo. Whew, I said it. Now I guess I have to deal with it.
How? I understand that it is not life threatening. I understand to you it's not "so bad". I understand that it "could be worse". I am tired of people saying th
it started on my face, my forehead to be exact, last August/September.....I had a huge area of pigment loss that turned seemingly white very quickly, although it seemed to "calm down" once I got bangs to cover my forehead and there was no sun exposur
Hello to my Vitiligo family! Question: Does anyone on here have segmental vitiligo like me? I have yet to talk to anyone that has it like me. I'm very interested in this if someone does please let me know. Thanks!! Much Love!