Hi all,
After many years of trying seek the right medical treatment for Vitiligo, I've come to the conclusion of doctors lack knowledge although some doctors know what Vitiligo is there isn't doctor out there who can possibly say I can cure this skin condition or I have cured it. I know there is a lot of scamming sad people on the Internet saying they've got a cure, pay them an x amount of money and they'll give some fake pills, oils etc. (I've been a victim of fraud)
I've done extensive research on our condition it's been around for a long time yet none or little research has been done to find a significant cure that is permanent. I believe this condition is an internal problem as it changes with what you eat, how you sleep and stress.
I'm very disappointed as we're in 21st century, yet nothing has been found. Sometimes I stress myself trying to find a cure, other times I hate myself for it and keep tracking back to how did I get it?
I hope there is research and someday we'll have a break through. But from my experience UK is very much behind for Vitiligo which comes as a little bit surprising.
Thanks,
Delwar
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i know you mean. it is very frustrating when they know nothing. one doctor told me that because this is considered 'cosmetic' research ... our health care is not putting this on their top research list for granting money... it sucks because this is more than cosmetic. i rlly do hope in the near future we have more answers :)
There is an easy way for treatment of this disease is through medicinal herbs, honey and natural diet
Susan Chen > Essam Abdel-RahmanJuly 11, 2012 at 2:45pm
hey Essam, can you share with us this 'easy treatment' you speak of? you mentioned organic bananas, dates, + pomegranate + spices... what are your instructions for taking this? How much do we eat? Have you tried this treatment? did it work for you? how long did it take?
We know the problem, but how do we find a solution.
This is where I have a problem with the National Vitiligo Foundation....Non-Profits are supposed to provide a needed service. Well, why are you collecting money and not sponsoring a National Vitiligo Center for Research and Development here in America? Why aren't you paying dermatologist and nutritionist to conduct studies and search for solutions? You can't tell me every doctor in research only cares about cancer cures! Why aren't you collecting blood samples and looking for the common gene in our DNA that causes Vitiligo?
Look at their Clinical Studies link...and I quote "Clinical Studies The National Vitiligo Foundation does not endorse or have any responsibility for the following clinical studies. Individuals who participate or volunteer do so of their own accord." So basically your are copying and pasting the research of other, right? What do you endorse...what have you done? Oh yeah...you raised awareness by have a Vitiligo day...GTFOOH! You can keep your wrist bands and coffee mugs.
i agree with you, it really sucks that vitiligo research is put aside while other illnesses get more attention. i think that because vitiligo research is less funded by the gov't because they think it is just a appearance issue aka non life threatening but we both know that is untrue because vitiligo is psychologically damaging. another reason way there might be little research done is because vitiligo is a 'colour-skinned' peoples problem ... by that i mean if white ppl have vitiligo - it barely shows (i'm not saying it is not psychologically damaging to them), people who are non-white - browns, blacks, asians etc - in my opinion suffer more. this is similar to how HIV is or was understudied because it wasn't a white persons problem. i really hope one day soon, our white spots will be cured :)
Like it was stated earlier I guess since it's not life threatening, it's not considered as much of a big deal as let's say cancer or AIDS would be. Its hard being 15 and having to go through something so emotional and mentally damaging alone but I'm so glad I found this website. Anyways, my doctor - that I've been with since I was born, is almost clueless about vitiligo whenever I see her all she has to say is, "It's going away," like that's supposed to mean something.. I just want to do SOMETHING to help get the vitiligo community out of the bushes!!
im 17 n ido wish the same :9 sometime i want to be a dermatologist or ascientist and get the world outa dis vitiligo n mend all the broken hearts !!:( :(
really i feel like no body in the whole world care about vitiligo problem n 4 sure it is spreading so rapidly in front ov ma eyes , AIDS & CANCER are curable n not dis vitiligo i mean there r millions ov cosmetics being invented everyday for extra beauty n not any special thing just to re pigment our own skin colour? n really peoplr ill say '' this isnt curable''
Replies
i know you mean. it is very frustrating when they know nothing. one doctor told me that because this is considered 'cosmetic' research ... our health care is not putting this on their top research list for granting money... it sucks because this is more than cosmetic. i rlly do hope in the near future we have more answers :)
I mean any of organic bananas, dates and pomegranate spices like black pepper
There is an easy way for treatment of this disease is through medicinal herbs, honey and natural diet
hey Essam, can you share with us this 'easy treatment' you speak of? you mentioned organic bananas, dates, + pomegranate + spices... what are your instructions for taking this? How much do we eat? Have you tried this treatment? did it work for you? how long did it take?
We know the problem, but how do we find a solution.
This is where I have a problem with the National Vitiligo Foundation....Non-Profits are supposed to provide a needed service. Well, why are you collecting money and not sponsoring a National Vitiligo Center for Research and Development here in America? Why aren't you paying dermatologist and nutritionist to conduct studies and search for solutions? You can't tell me every doctor in research only cares about cancer cures! Why aren't you collecting blood samples and looking for the common gene in our DNA that causes Vitiligo?
Look at their Clinical Studies link...and I quote "Clinical Studies The National Vitiligo Foundation does not endorse or have any responsibility for the following clinical studies. Individuals who participate or volunteer do so of their own accord." So basically your are copying and pasting the research of other, right? What do you endorse...what have you done? Oh yeah...you raised awareness by have a Vitiligo day...GTFOOH! You can keep your wrist bands and coffee mugs.
i agree with you, it really sucks that vitiligo research is put aside while other illnesses get more attention. i think that because vitiligo research is less funded by the gov't because they think it is just a appearance issue aka non life threatening but we both know that is untrue because vitiligo is psychologically damaging. another reason way there might be little research done is because vitiligo is a 'colour-skinned' peoples problem ... by that i mean if white ppl have vitiligo - it barely shows (i'm not saying it is not psychologically damaging to them), people who are non-white - browns, blacks, asians etc - in my opinion suffer more. this is similar to how HIV is or was understudied because it wasn't a white persons problem. i really hope one day soon, our white spots will be cured :)
They are just a money making scheme... not a real advocacy organization even though they want us to believe they are...
Like it was stated earlier I guess since it's not life threatening, it's not considered as much of a big deal as let's say cancer or AIDS would be. Its hard being 15 and having to go through something so emotional and mentally damaging alone but I'm so glad I found this website. Anyways, my doctor - that I've been with since I was born, is almost clueless about vitiligo whenever I see her all she has to say is, "It's going away," like that's supposed to mean something.. I just want to do SOMETHING to help get the vitiligo community out of the bushes!!
im 17 n ido wish the same :9 sometime i want to be a dermatologist or ascientist and get the world outa dis vitiligo n mend all the broken hearts !!:( :(
im really vid u on this issue!
really i feel like no body in the whole world care about vitiligo problem n 4 sure it is spreading so rapidly in front ov ma eyes , AIDS & CANCER are curable n not dis vitiligo i mean there r millions ov cosmetics being invented everyday for extra beauty n not any special thing just to re pigment our own skin colour? n really peoplr ill say '' this isnt curable''
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