Temporary solutions
Does anyone know of any kind of temporary skin dye to cover up the areas affected? I am talking about places like your hands/fingers. Thanks
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Main (1723)
Dissapears???????????
Everytime i post something on the main wall it dissapears. anybody kno why?????????
Read more…Vit diet
Hi everyone - just wondering what foods to avoid as i dont have a varied diet ( a lot of wholemeal bread ) i love pasta fush chicken etc - and would llove too hear from anyone who has had success with vegetables as i really live veg ! If anyone has a
Read more…B12 and transfusion
I started my B12 injections yesterday and also found out that I could possibly need a blood transfusion in the next couple of weeks. I'm very anemic and have no energy. I can't sleep at night and I don't know what else to do. Has anyone else experien
Read more…SCENESSE
Was reading last night about this new treatment that the FDA are testing. It is called Scenesse, which is a famelanotide melanocyte stimulating hormone that will activate the melanocytes that will stimulate the skin pigment cells. I am still resear
Read more…Insurance denied UVB-NB therapy
Hi all-
I was diagnosed with vitiligo just a short while ago (about 1.5 months) and while I know there is no cure, the one thing I've been holding onto as helping the most is light therapy. My dermatologist ordered the therapy, and a pre-authorizati
Read more…MELANOCYITE TRANSFUR
Some time ago there were some vitis from this group who has got free offer by dr .Vivik we haven`t heard the result Is there any one who has appdates or any other exprience.
This webcite is claiming that it is one of the best treatment , if vitili
Read more…NVFI is looking for a spokesperson in NYC
The National Vitiligo Foundation is looking for a woman who was recently (within the last two years) diagnosed with vitiligo to appear on a NATIONAL TELEVISION SHOW to help RAISE AWARENESS of this condition. She must live in NYC and have vitiligo on
Read more…OK, been dealing with this loss of color going on a year soon....
it started on my face, my forehead to be exact, last August/September.....I had a huge area of pigment loss that turned seemingly white very quickly, although it seemed to "calm down" once I got bangs to cover my forehead and there was no sun exposur
Read more…Bad Dr. experience
Hi there! I'm brand new to the site so I thought I would introduce myself. My first sign of pigment loss was noticed in 2003. It started as a little white patch that appeared on my left hand (I was right out of college working a really high stress jo
Read more…Protopic / Tacrolimus cream users review
After other creams not working my dermatologist has now prescribed Tacrolimus (protopic) - which is apparently not commonly used in Australia...I even had to find a 'compounding pharmacy' so they could especially prepare this for me - expensive too,
Read more…is it safe to use protopic after airbrush tanning
i need some advise from anyone that has or uses airbrush tanning. would it be ok to continue using protopic & taking sun, after having the tanning? please send me some imput as soon as possible, as i am about to have airbrush tanning this week.
Read more…I have been burnt in the sun and my pigment has come back
I have been burnt in the sun and I have black pigment coming back and couple of years ago I treated it with monobenzene.
Read more…Steroid Cream is working!!!!!!!
Hello all! I just wanted to post that my steroid cream, Desoximetasone, is definitely working. It has been 1 month since I started applying it every day and the freckling is really starting up! My doc is giving it 3 months to see how much repigmen
Read more…Help
I've trying to been look up foods that can help prevent future spread of vitiligo & stuff like that, but all the websites I have found haven't been telling me anything, so does anyone know what foods would help & what foods to stay away from?
Read more…Newly diagnosed 5 y/o - protopic question
Hi everyone!
My name is Jennifer and I am a mother to 5 y/o Jack. Jack was just diagnosed with vitiligo a few weeks ago. I noticed some spots around his mouth a couple moths ago and they seamed to get darker and darker. I finally took him to see hi
Read more…help with makeup
Hello!!,, I have been having vitiligo since the age of 5, but learnt to live with it :). I heard there are temporary solutions such as makeup, thought i could try some while working. Could anybody help suggesting a brand or your experiences?..
Read more…disgusted
I'm really starting to lose my faith in people, especially our society today. I was listening to the radio and it's "text your confessions tuesday". All i heard was cheating on her, cheating on him, cheating with my boss, neighbor, husbands brother,
Read more…Vitiligo and second grade
I have a seven year old little girl who has vitiligo, she has had itsince she was 2 so it is not new to us. However we recently moved to a new place. In her last school all her friends had known her for as long as they could remember and never even t
Read more…Summer tips for coverups
I think vitiligo is the worst for me during the summer time when all my friends are at the beach and swimming and at pools. It drives me crazy that I am so self conscious that I end up avoiding these events until night time. By this time most of the
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