Hello all. I have had Vitiligo for 19 years. Wow that's the first time I realised how long I've had it for lol, as I had never really thought about it before!
Anyway, I am very very insecure because of it ( also because I had a baby at 16 and have th
Read more…hi all I have been reading about the MTHFR gene and how mutations of this can result in vitiligo. Basically the mutation means your body doesn't use/absorb folate properly, so depending on how many bad copies u inherit ur folate absorption can be as
Read more…Has anyone tried "Vitliigo Cover Lotion", and if so what did you think? It works like a self tanner, but sounds better....
Thanks
Cindy
Read more…Has anyone tried Afamelanotide for vitiligo?
http://en.wikipedia.org/wiki/Afamelanotide
Afamelanotide (pronounced /ˌæfəmɛˈlænɵtaɪd/ ( listen)) developed at the University of Arizona is a synthetic analog of the naturally occurring melanocortin pe
Read more…I shall be hopping along to the Dead Sea in June/july so if anyone would care to meet up there or share hotel room or make a group....options are all open. Do let me know and we can have all a great time over there and the bonus may be "THE CURE"..
Read more…Hi there! I'm brand new to the site so I thought I would introduce myself. My first sign of pigment loss was noticed in 2003. It started as a little white patch that appeared on my left hand (I was right out of college working a really high stress jo
Read more…Can someone explain to me how a doctor can diagnose using a Woods Lamp. My son's dermatologist was very against using it because she says it only tests for tinea versicolor. Everything I read says it could test for vitiligo. She showed me and said it
Read more…Hi All
I stumbled on this study online, thought it was fantastic, I hope you have time to read it.
Although it is 5 years old, there is much less literature around on the psychological aspects of managing vitiligo, than physical symptoms and treament
Read more…Hi all! My son has some spots that are repigmenting. Have any of you had this happen and then have the vitiligo reappear in that same spot later on? Our doctor said it is the same chances of spots anywhere on the body. I think the sun and Elidel is w
Read more…Has anyone tried UV-B light? Wanting to know your outcome before spending money on the lamp.
Read more…We have just come back from Germany with our daughter Isabelle who has vitiligo we went to visit Professor Schallreuter and are now doing treatment on Isabelle using the German PC-Kus and light therapy has anyone else vistied Professor Schallreuter a
Read more…We waited 2 weeks for my granddaughter's biopsy to come back from the dermatologist office. She's 12 years old by the way, they called us up and said that she tested positive for Tinea Versicolor a rash caused by a fungus. Our first reaction was did
Read more…Check out any of the video links below. There are lessons to be learnt.
Wish I was as brave as the guy on the video.
http://on.aol.com/video/the-most-inspiring-farmer-youll-ever-meet-518245875
http://www.dump.com/inspiringfarmer/
Read more…Hi friends, I am new to this site and love all new information I'm receiving. I was diagnosed about a year and a half ago. I have recently made a real effort to get as much sun or uv from tanning beds as suggested by doctors. I am seeing returning co
Read more…I am searching for a makeup that will help blend my spots on my face. I don't want heavy. Any suggestions?
Read more…HI! as most of you know, june is the vitiligo awarness month and june 25th is vitiligo world day.
recently i discoved one of my best friends has vitiligo too! we both been hiding it.
well, how i discovered it? i decided to post a picture to instagra
Read more…My lovely granddaughter is 12 years old and she was just diagnosed with Vitiligo. I had no idea what Vitiligo was and as you can guess our family are all just beside our selves, anxious and worried about her well being and her quality of life. Along
Read more…One for the guys in the UK.
The UK vitiligo society will be holding a meetup in London on 28 June 2014.
Will anybody be attending? I've never been to one of these and am considering going.
For more details visit: http://www.vitiligosociety.org.uk/
Read more…
