I have been taking topical PUVA for 3 years for Legs and hands but no use. The vitiligo is spreading and new ones are coming up
So much frustrated and Checked with my doctor on other options today. The doc indicated we can either try Punch grafting v
Read more…Hello friends,
I have had vitiligo since i was 10 and will be celebrating 17 years this May. For me, vitiligo has been a way of life. I am a better person because of it. I love the fact the Vitiligo works as an ice breaker with strangers. Most often
Read more…Hi friend, Please advise me I want to try these above vitamin supplements for vitiligo, do I need to go to a doctor and have them prescribed. Please tell me about your experience. Regards Vivek
Read more…Hi everyone,
I've previously posted on Clinuvel's clinical study program, evaluating the safety and efficacy of our drug SCENESSE (afamelanotide 16mg) in generalised vitiligo. The company has just announced that we will start a new study in Singapore
Read more…Too all of you that've tried gluten free diets, how was the results? Did you regain pigment? Answers are greatly appreciated.
Read more…Hi Everybody,
Just finding two new vitiligo spots! It's been over a year since I have gotten any new spots. I had thought that the Thyroid Meds and Protopic use had stopped the spreading. But NO wasn't ment to be.
My question for this discussio
Read more…I'm interested in taking Melatonin for sleep regulation.
I have vitiligo, mainly in areas you can't see. I am being overly cautious, I'm sure, but is it advisable to use melatonin given its relation to melanin? Forgive me if it's a "dumb" question,
Read more…Check it out at:
http://vitiligomap.com/groups/promising-vitiligo-treatments/forum
If you also follow an effective treatment protocol, please take some time, write it down and publish there.
Thanks.
Read more…I've recently changed my diet to focus on nutrients to help with vitiligo. Below is what i am currently taking. Please share your thoughts and recommend something which should be added or removed from this list. Thanks multivitamin - has a wide arra
Read more…hey everyone I'm new to this site c: so I've been doing some research and was curious as to what would be the healthiest way of eating with Vitiligo. I've heard of the Paleo diet and was wondering if that would be a good start. Are there any good res
Read more…hi im a 17 year old girl who is starting to stress out about my upcoming grad dress situation. Im already a very pale person but on my arms and back my vitiligo is pretty noticable, i usually use hardcore makeup to cover it but my dress might be whit
Read more…HI Friends, I am Having Vitiligo from last six years. Few months back during my HP visit, i met with old person and he gave me formula of one Ayurveda medicine to cure this, this medicine can be made with bawachi powder, oil, leafs etc. As i is pure
Read more…Hi everyone, my name's Shivani and I m new here. I'm very glad to be a member of this site. I like reading books, listening to music and travelling if possible, I am research scientist and a vitiligian/lukodermic too.
Nice to meet you all!!!!!
Best w
Read more…Hi,
I'm 31, male. Until 2 years ago I was an average guy - well educated with a good job and a normal social life. Then I developed vitiligo in the most unfortunate of places. Subsequently my then gf gradually cooled our relationship down until we b
Read more…I receive the following email from a television producer. You can contact him directly if you are interested. I don't know them and so please do not consider this a recommendation--just passing the information along.
======================
Hi Steve,
Similar to Xeljanz, Ruxolitinib (Jakafi), a drug that inhibits Janus Kinases (JAKs)
"This result is really exciting, because it is an oral drug that had a very rapid effect on vitiligo, improving the patient’s facial pigmentation from less than 1% t
Read more…Hi all, i was looking through youtube to see if i could find any new news on potential vitiligo cures and research. There is so much junk on there. Oh my god! Since the last time I went on Youtube the amount of bogus claims has gone through the roof.
Read more…Hi all, Has anyone tried pigmento? Some type of herbal vitamins that supposedly have research from a doc in India? Sounded like a good holistic treatment but then again so have other things. Also- I am doing laser treatments and did repigment quite a
Read more…I follow the megazine from Vitiligo support Group , It has alot good info from trusted Sources.
http://newsletter.vitiligosupport.org/index.php?action=social&c=9cfdf10e8fc047a44b08ed031e1f0ed1.273
Read more…
