Hey, I'm a 16 year old girl with vitiligo since I've been born. I really can't accept it. I'm always embarrassed no matter where I go. I have it around my eyes, my shoulders, legs, everywhere. People start to notice these and say smart ass responses. I just laugh it off as if it's nothing but it really bothers me knowing that I can't cover every spot. I really can't wear a bathing suit or go out without sunglasses in the summer because I get tan and make them more noticeable. I feel like a baby complaining about it. but no one really understands how much their comments actually hurt.
You need to be a member of Vitiligo Friends to add comments!
Replies
Hanna, these friends have said everything you should know. You are not alone !
The good thing is that there are some hope going on, like this
http://www.labspaces.net/127054/Modified_protein_could_become_first...
While it's not available, please start following a treatment as soon as possible.
Try to cover all possible causes described at http://www.vitiligofriends.org/forum/topics/vitiligo-cure-is-a-puzz... since vitiligo cause comes from inside.
Don't panic. It will not help you.
I can relate to you so much! I have had vitiligo since I was 8 years old (now 25). I am 75% covered and the hardest part for me of dealing with it was high school. Kids can be very very cruel! Fortunately I have a very good support system when it comes to my family and regardless of what people would say, they would always remind me of the person I am and the heart that I have. Over the years, I have developed thick skin. It still hurts with the blanks stares people give me and the comments people say sometimes, but vitiligo is a part of me. It took a long long time for me to accept it. At the end of the day, what you tell yourself is the most important. Never doubt who you are as a person, because of the opinions of others.
Although, after everything I've been through (both with and without relation to vitiligo), I've learned that the most important thing is to learn how to love myself and how to be there for myself, because I too have found that nobody quite understands. I'm not saying that nobody ever will, but if I can't love myself and be there for myself, how can I expect somebody else to?
I move around a lot and everywhere I go, everyone has an entirely different opinion about me, so I quickly learned how to keep in mind what I see for myself and how to dismiss their highly irrelevant insights. It hurts and it's hard, but we all have our own problems to deal with, no matter the magnitude of its extent, so just watchout for yourself. It's okay to cry, but learn to pick yourself back up and fight, like Andrey said. A counselor or a therapist can really help. That's what helped me out with accepting my vitiligo, and I think I'm almost there. You have to be there for yourself :) good luck.
Also, you're not a baby for complaining. You're strong for seeking help and being able to talk about it. That's something I couldn't do for a very long time. I hope this helps :)
Hanna ..It is not only you ...I cant Accept my vitiligo either, that is why I am fighting as Andry say try all possible treatments arround the world I know One day I will win ..I have repigmented fully several times some fadeaway ..Im trying to find what I do wrong that the repig is not permanent for me.
Ppl who Accept there vitiligo they dont try much treatmernts like us..
Dont accept it . Fight it . And by fight it i mean you must know that you will win , you must that you will win and there is no other way about it . Its like boxing ring - if you do not believe you will win you are done before you even step in to it .
You have your whole life ahead of you - dedicate it to find a cure , read all you can , try a new diet but most important - BE THE WALL . By the wall i mean be the one nobody can hurt . Never stress , never drink alkohol ever , never speed up or coke up ( it was a big part of me getting Viti im sure ) . And look up all the supplements like amino acids , vitamins , manganese and stuff . Check your thyroid gland .
It is impossible that there is no cure for Viti , its is impossible .
Again never stress ! Every thing, situation or person that makes you stress must be eliminated out of your life , either on a bang or little by little .
And last but not least . Take it from me , from someone that has seen "cold prisons and unfinished novels" - you have to live , there will be no other life , no other chance , you have all the time in the world , you or someone else will find the cure sooner or later !!!
The only point of living this life is to feel good .
Other people are there to put you down cause that makes them feel good , so you are the only one that can pick yourself up and feel good .
Nobody else has to love or respect you , nobody has to be nice to you ...you have to love and respect and be bice to yourself .
YOU !
"My coach would always tell me. Refuse to lose " Mike Tyson
PS. Somebody will find the cure sooner or later !
+1