Gender
Female
Gender
Female
Location
North Canton, OH
Birthday:
March 23
Hometown:
cary; NC
Relationship Status:
In a Relationship
About Me:
i got vitiligo when i was 16 after a near fatel car accident. it started at the injury sight then spread to alot of places. i then started using alot of drugs, i didnt know what was going on...but i think that might have made it spread i wish i could find a cure for it, don't we all. but i have never tried any kind of treatment. today i am starting a gluten free diet/ piperene tablets followed by folic acid 800 and b12 1000 oh and fish oil gel tabs. i think im going to take weekly photos to see if there is any progress. and if you guys want i could post them. i know it sounds dumb but i every picture i have, my vitiligo is covered up with tons of makeup. (wish i had more confidence) but im working on that. :) nice to be a part of this sight>
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Hi Cody~
We have been using Protopic, not as religiously as we should be...but he says it burns his skin and especially around his eyes so I don't force the issue. We also started using a steroid to hopefully calm the spreading. Sometimes I wonder if all of these treatments might be worse than having vitiligo itself. The results have not been what we might like but then again when we don't always use it as often as we should it's hard to be disappointed or to have really high expectations. He seems to accept that he has vitiligo pretty well. Many might think that having it start on your face would be the worst. I actually think that it was for the best, otherwise he would have always been thinking...just please not my face while living with fear that it would spread there...and then being disappointed when inevitably it would.
You are so pretty, how do you feel emotionally about having vit. Do you cope with it well? It really is an up and down thing for Dylan and he's only 10, I wonder how his feelings will evolve and change as he grows older.
Have a great day!
~Jodie
Hi Cody,
Welcome to Vitiligo Friends! I am farely new to the site myself, but I have found everyone here to be very supportive and informative.
- Barnetta "Mosaic" Barnes
http://mosaiclifeonline.blogspot.com/