Posted by Lisa Eastman on August 4, 2009 at 7:34am
As I get older it seems that my vit spreads much more quickly. I wish I knew how to control it. Since it is covering most of my hands...I would hate to imagine my whole hand and all the way up to arm being covered. I am so said. Every morning I seem to notice the spots getting closer and closer together. I cant even wear short sleeves because my armpits are covered so largely. I wish there was something I could do. I havent tried treatment since I was a child...but I am just afraid that nothing will work. If anyone has any knowledge of how I could slow it down....PLEASE let me know.
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Hi Lisa I lost 30% of my skin color in 1 year and I am an african american. I found that the more i noticed it the more it came. Then I started meditating on what color remained and how that was good, and on how lucky I was that I had no other health problems. Most important that I was still me and that i love myself and that others love me. Then it stopped spreading. LOve yourself and put fear behind you and seek medical help. Do what will make you love you. Bless.
Since mine has started spreading , particularly on my face I have sunk into a real depression and hardly go out.Every day at the moment when the sun shines I know I need to avoid it as I seem to colour on my face and hands even with a high factor sun cream on.I know I need to come to terms with it but its so difficult...
It is a depressing condition. I first discovered mine about 9 years ago. It began as a small spot on my index finger and now my hands are about 75% white (I'm African American) and I get a lot of strange looks. Sometimes it doesn't bother me but when I notice people staring at me I get a bit of a complex but I've come to realize it is what it is. Unfortunately for now there aren't any cures. Just realize that you are beautiful!
Hi Lisa! I am going through the same thing. Mine has spread ridiculously fast since last January. Even old spots that had gone away with treatment are back. I'm currently doing UVB in my house and using Elidel, also I'm waiting for an appointment to get a referral for a dermatologist since NB-UVB worked wonderfully well for me in the past. Stress has been a great trigger in me. In the past couple of days I've been thinking what has changed in my life since the vit started to spread so fast. And, besides stress, I have stopped exercising, don't eat as well and my sleeping habit goes up and down. Don't know how much any of this helps, but hope it does!
Lisa Eastman > Nilda-MelissaAugust 13, 2009 at 12:45pm
i think i should def start exercising and that would help a lot. some creams would be helpful too im sure. i just need to get on them!!
Hi myria, I also have ezecema and my repigmentation has seems to come back like yours also, do you know what foods and other thing trigger yours exzema. I I seem to be responding well to the protopic.
Lisa Eastman > Nilda-MelissaAugust 13, 2009 at 12:44pm
i do hope i can figure it out too.. hopfully relxing more will do the trick but i really dont know for sure.
Hi Melissa! I am interested in how you're getting on with home UVB treatment? I bought a NB-UVB 'wand' recently and have used it a few times so far. I'd love to hear any info on your regime, how often you use it, do you expose all skin or just vit areas, etc? I also went to get a derm referral but will have to wait a few months, but am keen to get a cream as well. Is it safe to use both together? Look forward to your response...Gem :)
Hi Gemma! I'm actually doing the UVB treatment once every two weeks, because it has been burning my skin a bit. This can be very annoying, but I'm also seeing some color (very little, but progress is progress) once the peeling goes down. I believe this is happening because when I was younger my dad used to help me, so he would keep a better distance. Now, since I do it by myself, I think I might put the lamp too close to the skin.
My treatment is actually osxolaren + UVB. When I was doing the NB-UVB, I didn't have to apply any medicine, and no burning ever occurred. My skin would feel like I had a tan, but personally I didn't mind that. Sure, it might be more sensitive, but I'm from Puerto Rico, we would get tanned just by walking on the street! =) So, if you're just doing the NB-UVB, I'm guessing that you don't have to apply any medication, which means your biggest worry is not to spend much time under it. I also use a "wand", so it's only on certain spots.
As far as I know, it is safe to use both the lamp and the cream. I have had two dermatologist tell me this. It is only to accelerate the process.
I hope this helps! Feel free to keep asking =)
Nilda-Melissa > Nilda-MelissaAugust 15, 2009 at 10:05am
Replies
My treatment is actually osxolaren + UVB. When I was doing the NB-UVB, I didn't have to apply any medicine, and no burning ever occurred. My skin would feel like I had a tan, but personally I didn't mind that. Sure, it might be more sensitive, but I'm from Puerto Rico, we would get tanned just by walking on the street! =) So, if you're just doing the NB-UVB, I'm guessing that you don't have to apply any medication, which means your biggest worry is not to spend much time under it. I also use a "wand", so it's only on certain spots.
As far as I know, it is safe to use both the lamp and the cream. I have had two dermatologist tell me this. It is only to accelerate the process.
I hope this helps! Feel free to keep asking =)
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