Gender
Female
About
Location
Captain Cook, HI
Birthday:
November 16
Relationship Status:
Single
About Me:
I think i got vitiligo from extended time in the Hawaii sun poisoned by too much sunscreen, but who knows? I have an ecotourism business here, so I enjoy hiking and kayaking in Hawaii.
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Yes let the make up go and feel free!! I only wear it on my face. But soon and very soon that will be going away too!!
Hi and Aloha to you Betsy, thank you. Yes I do have vitiligo on my face. However, I will not go out without makeup on my face. It circles big around my eyes and is now right below my nose - upper lip area. It is progressing up my nose. I feel very good about the vitiligo. It does not bother me as much. This summer was my coming out. I wore short sleeves pretty much all summer. It was like over night I felt ok. If I see someone staring, it is my self granted open invitation to educate the person. That is if I feel like it that day. Lol. I also have a little paragraph about it on my desk about the vitiligo. People see u as u see yourself! I feel like we have been granted the opportunity everyday to live and love for one more day. I choose to live and love!!!!!!!!!!!!!!!!! Don't let vitiligo keep you in morning. Live and make a difference. Thank you for your warm comments!! Cawanda
Betsy here's one of forum discussions about how people try to take advantage of us with false claims and fake cures
I gave up trying to treat vitiligo because it's an auto immune disorder so all the topical cremes,medicines and light treatments really are not worth it, until the immune system it's self is repaired that's why vitiligo happens because of a malfunction in the immune system so treating the skin will not solve anything it will just cause you too spend more money and that's what these companies want us to do because we are vulnerable because we want a cure so bad and companies will take advantage of you. Have you noticed all the so called cures and treatment that the spammers try to list on this site before they are removed by Steve. People take advantage of us Vitiligo people and others with diseases and disorders because people are greedy for money and will try to hustle you if you let them just becareful and keep your eyes open because individuals and companies are going to offer you false hope to cure Vitiligo and if your weak enough you will fall victim just like a person who has been a victim of identity theft just watch yourself out there people !!!!!!!
Why not add a discussion here and find out if anyone here has had good results with Protopic on areas other than the face. I might switch to Protopic myself - if I hear positive results from others !!
Take care,
Nadika
I have seen many Ayurvedic and conventional doctors here and if I added their "do not eat" lists together - it will come very close to your style of eating. None of them said that eggs and tea was bad for us though! And they said some types of fish was okay. BUT they specifically said no prawns (shrimps!). So take note to double check if shrimps are actually good for you.
Also, give attention to the kind of soap and shampoo you use. My doctor said to use only baby soap and baby shampoo. She also said to use a non-Fluoride tooth paste. And no perfumes to be sprayed on the skin! (Spray on to clothes instead!)
I wonder if you are on any kind of treatment for Vit or you just control what you eat !!.
Good luck to you (and to all of us !!)
Nadika.