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Vitiligo Awareness Day June 25th?

Posted by Steve Hargadon on March 20, 2010 at 11:08am
Wonder if it would make sense to start a Web campaign to have June 25th be Vitiligo Awareness Day.  That will be the one-year anniversary of Michael Jackson's death, and there's sure to be a resurgence in discussion of his Vitiligo.

If we did this, any ideas of events, activities, or other ways of getting publicity?  I'm guessing the primary goal would be to provide support for children and adults who have Vitiligo and feel lonely or separated from others because of it.

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Replies

  • Denise Blanks June 4, 2011 at 9:33am
    Great Comments & I really appreciate what you said Sand! Thanks! I'm for it too! There is not a local support Group here in Indy yet! but I will definetly plan to wear my shirt & arm bands on JUNE 25th!!
    • Sarah Shadows > Denise Blanks June 5, 2011 at 8:38pm

      I'm ordering the vitilgo shirt from the NVFI Store this week..hoping its here in time

      to wear on the 25th..at least something I can do to help raise awareness for Vitilgo.

      I think my mom is going to order one as well..

       

      What else can we do online & facebook?? How about a blog..to raise awareness & share stories

      and messages about it? I would be happy to help if anyone is interested in this..I use blogger a lot.

  • Paula Brosnan June 3, 2011 at 2:28am
    Steve, 
       I know I am coming in late on this post, but this 
    Is a wonderful idea. What can I do to help? 
    I think something that stands out would be great to
    Help with awareness of vitiligo.  
    • Ogo Maduewesi > Paula Brosnan June 3, 2011 at 5:09am

       

      Hello Paula,

      We have taken it off from where Steve stopped and starting mark the June 25th as Vitiligo Awareness Day this year and will be making detailed plan for 2012. See a campaign page on that on facebook http://www.facebook.com/pages/World-Vitiligo-Day-June-25th/19107413...

      SO many people have identified with it, another group http://www.facebook.com/VITILIGOBONDINC in USA is working towards that and another in Indonesia with different indiviuals Identifying with the cause. Its our work to do, its only us that can bring Vitiligo to Wrold Center Stage.......

       

      Thanks 

      Ogo

      • Sarah Shadows > Ogo Maduewesi June 4, 2011 at 7:47am
        I would love to help with this as well...
  • Cheryl May 31, 2010 at 6:33pm
    That would be AWESOME!!!!
  • Sand May 29, 2010 at 6:27pm
    I think that the underlining theme to Vitiligo Awareness Day is: More than Michael.

    Because Vitiligo clearly affects more of the population than Michael Jackson - all of us for example. Through each post we see how varied we are and how varied our experiences are but one thing connects us: Vitiligo.

    The reason I believe that Steve suggested June 25th be known as Vitiligo Awareness Day is that Michael Jackson will always be the most famous person with Vitiligo. Seriously, nobody can deny that! For most people, he is the face of Vitiligo. He is the introduction to what we've got.

    With his death there was a resurgence in the media about his music, his accomplishments, his trials and tribulations and of course his appearance and tied to that....Vitiligo!

    With Vitiligo being talked about so heavily at that time in the media, and certainly not in a positive light. It was at that time that I decided to come to terms with how it's affected my life and I joined this and other online Vitiligo communities. And It's done a lot of good in my life!

    So, I can't deny why I'm here on this board and why I'm working in creating a local Vitiligo support group in my community - it's because of Michael Jackson.

    For me June 25th as Vitiligo Awareness Day isn't in celebration or to honor Michael Jackson but more as a way to steer the media in acknowledging that Vitiligo affects more than just Michael Jackson.

    I propose it be Vitiligo Awareness Day: More than Michael.
  • Ciney B May 28, 2010 at 1:03pm
    To bad Michael Jackson didn't support any causes for Vitiligo, so I disagree with taking his name onto anything dealing with the awareness of vitiligo. If anyone, ANYONE, can show me that the man supported a cause/ awareness / charity /or something Please let me know. I just think credit should be given when due.

    As for the autopsy, I don't care what it said. The man had more money then probably any of us on here and we all know that money talks. RIP, MJ and your music will be missed, but I don't support tacking his name onto anything having to do with vitiligo.

    YOU GUYS ARE MY SUPERSTARS and the ones who bring light to the condition.

    Smooches!
  • Nelly Cardinale May 22, 2010 at 5:44pm
    I love this idea and think it would be a great way to honor Michael Jackson's life and at the same time bring awareness to this genetic auto immune skin disease.

    Let me know if I can help in any way, I am off work with pay for the summer right now.
  • balanduke May 5, 2010 at 11:44pm
    Russia joins your ideas!
This reply was deleted.