Hey this is Cheryl and I was wondering how everyone deals with their Vit when summer is here. This weekend was just horrible for me. I cried and I cried....I have not been like that in a real long time! I wish I had more confidence..but some days are just that hard for me. Any tips pls let me know! Thanks everyone for letting me vent lol!
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Hi,
I think I feel the same as you and everyone else that, summer time for people who have vitiligo sucks. Especially when I want to wear a bikini or shorts, I have vitiligo on my legs and sometimes I just want to hide out in my house.
HI Cheryl! GoshI I so know how you are feeling. Over the past couple of years my vitiligo has gotten worse, so I've been doing less and less outdoors. This summer I started trying Novitil to see if it would do any good, but the directions say to spend at least 15 mins to a half hour in the sun after it is applied. Even though I am using sunblock on the rest of me, my spots seem to be getting more and more obvious as the rest of me gets tanner. I find myself feeling fearful every day that maybe this isn't working and that maybe it's just making it worse, but since I haven't used it for long and I can't tell if it is working yet, I keep going out each day. When I started getting darker I also started using a sunless tanning lotion on my spots so they wouldn't be so obvious, which makes them look a little better but makes it even more difficult to tell if it's getting better or not. It seems like some days it gets to be a vicious circle. Every time I look at my hands or in the mirror I find myself begging God to please make it get better. He has answered so many prayers for me; some of them were really big requests too. I find myself wondering if He's going to answer this one.
I take a lesson from my dogs. If I'm walking down the street and people are afraid of my dogs and they shy away, my dogs will bark and growl. But if people walk by confidently like they aren't bothered by my dogs, the dogs walk past them without so much as a second look. I know that summer is hard, and I'm an Aztec Dancer, so we dance in the sun for 6 hours straight wearing almost nothing, every week, but it has to be done. I can't stop living because I'm afraid of what someones gonna say. I also cycle in the sun, shirt off back and fourth to work every day by choice, lap swiming to stay in shape,and I'm even thinking about learning to surf. There's so much to live for, so much to experience! Enjoy life and do things that you've never done before, and you'll be surprised at how confident you become! And believe me, people will notice that you aren't afraid! And to many, this makes a person very atractive. Yeah, there are idiots out there, but you can't hlet them have any kind of power over you. A lesson I learned as a kid from the movie Labyrinth with David Bowie.
Hi hun, I thnk in time you just gain more confidence in yourself. I remember when my kids were young and I had picked them up from school a couple of the kids had commented on my skin I remember going home filling the paddling pool for the kids then going upstairs watching them from the window and crying and crying. As time went on and the vitiligo got worse I found that I ignored the comments like my brain just switched them off and learned to love myself again. I am totally white now and still have to contend with comments especially as I work in a shop customers coming in as saying you could use a bit of sunshine and I comment back why on earth would I want to fry my skin. Ive stop trying to explain vitiligo to people now only close family and friends know about it.
o i hate this ,,,,,,,,,,,i cant even go and swim in teh public swimming pool cuz of this vitiligo..... today i got a total body sunburn ALL OVER.............geeze it hurts as helll
Hey everyone out there like me. Just had the worst time at a concert well a festival. It's been a good 5 years since i've been to anything like this, but never have people been so ignorant to me. Anyway the festival was called camp bisco the band that puts it on is called the Disco Biscits anyway everyone there was on some kind of drug people were painting themselves dressing up in weird costumes I thought that I would fit right in or blend in, but I was so wrong. I got messed with the whole time those freaks were calling me the freak. I also forgot that my spots glow in black lights, and i was in this tent and I think that this girl that was with me kind of liked me I think. anyway some guy started dancing with her. Then she turned and told that guy that she was with me, then he turned around and told his friends this girls into the freak. It's one thing if someone makes fun of me I can take it. but if they make fun of someone I'm with just because there with me It hurt so much. sorry crying right now just thinking about it.
Replies
I think I feel the same as you and everyone else that, summer time for people who have vitiligo sucks. Especially when I want to wear a bikini or shorts, I have vitiligo on my legs and sometimes I just want to hide out in my house.
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