this site -thx to steve - is the best place for doctors to do some research ! dont you think ?
am saying that cause am sure 90 % of doc`s rarely hear us " the V patients "
do you guys know any doctor or medical institution that is interested in vitiligo ?
if they could focus more on this condition that we all have and try to get some feedback from us , then we will definitely see some long waiting answers !
plus this site will make their own jobs easier :)
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Yes, it would be nice if we had medical doctors in this group. However, I do not think their medical malpractice insurance would allow them to be members of a group such of this one. I am not a lawyer but I believe that anything a medical doctor would post here would be considered medical advice and be subject to a possible malpractice lawsuit.
amr assaf > Nelly CardinaleDecember 13, 2009 at 2:55pm
you are right , but am not talking about giving treatments or prescriptions ..... am saying they could help with some advice on general matters ... like they do on tv :)
Unfortunately, this is a social media network in which people engage in real time discussions with each other. Therefore, it is totally different from the old fashioned TV media in which people only watch health related discussions or commercials.
Also on TV, many people claiming to be medical doctors are really not at all. Some are also MD's that have already retired, no longer have MD licenses and therefore can say anything they want without being scared of a malpractice lawsuit.
On this platform, the MD member would have to actually post their opinions in writing and that would probably be considered medical advice in a court of law.
On the other hand, I think that an MD could be invited to one of our online meet-ups to tell our group about some research that they are seeking candidates for and explain what the research is about. I think that this would be similar to what you would see on a TV platform with the exception that people would be able to ask questions about the proposed research.
I agree! Sami_(forget the other part of his name) says that he is a Dr...not sure what type...but there must be a way to invite some Dr's to the page...I go to Xtrac treatment 2x a week..maybe I can put in an invite/good word to my Doc to join...
amr assaf > Keigan WilliamsOctober 29, 2009 at 3:19pm
sami _calcio ...i guess he wanted to become one ..am not sure that he is :)
I agree. No one knows more about vitiligo than the people on this site. I'd like to have a doctor who cared who regularly checked in to this site who we could talk to. Does anybody have any suggestions?
Most doctors don't care. Mine sure doesn't. It's not exactly cutting edge research like a cure for cancer AIDS or diabetes would be. Vitiligo is un-glamorous. Michael jackson could have been our poster "child" and really got the word out there and contributed some of his money for a cure. I wish he had.
But if they could find a cure, prevention, or solid treatment for this, then they'd unlock the cause and treatment for a lot of autoimmune conditions.
You can go to Vitiligo Support International website and find a post by Dr Spritze ( I don't know if I spelt it correct) asking vitiligo patients to send him their saliva swab so that he can do genetic testing. He even said that he extended the deadline & might even lose the fund as he received limited samples and urged more patients participate.
Replies
Also on TV, many people claiming to be medical doctors are really not at all. Some are also MD's that have already retired, no longer have MD licenses and therefore can say anything they want without being scared of a malpractice lawsuit.
On this platform, the MD member would have to actually post their opinions in writing and that would probably be considered medical advice in a court of law.
On the other hand, I think that an MD could be invited to one of our online meet-ups to tell our group about some research that they are seeking candidates for and explain what the research is about. I think that this would be similar to what you would see on a TV platform with the exception that people would be able to ask questions about the proposed research.
Most doctors don't care. Mine sure doesn't. It's not exactly cutting edge research like a cure for cancer AIDS or diabetes would be. Vitiligo is un-glamorous. Michael jackson could have been our poster "child" and really got the word out there and contributed some of his money for a cure. I wish he had.
But if they could find a cure, prevention, or solid treatment for this, then they'd unlock the cause and treatment for a lot of autoimmune conditions.
You can go to Vitiligo Support International website and find a post by Dr Spritze ( I don't know if I spelt it correct) asking vitiligo patients to send him their saliva swab so that he can do genetic testing. He even said that he extended the deadline & might even lose the fund as he received limited samples and urged more patients participate.
to be honest i think i might participate in that research .
still i think a doctor here is a good idea :)