Since i have vitiligo i have had a hard time dealing with it. During the summer i coverup with long sleeves. Even when it's 90 degress out. My girls are 10 and seven. I have asked them if they will let it bother them when they get older, and they say no it will be too hot. But i worr that they say that now because they are wishing that they don't get it. I'm thinking it will be a differnt story when they actually grasp the concept of vitiligo. I know,i know how can i preach something to them that i cant even do. Wrong i know. I feel so torn up inside about all this. I did try one day and go out there with a shortsleeve and they said i got your back momma! But even though eventually half way through i gave up and put on my long sleeve. I feel lke such a failure. :(
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Dear Amy as the father of four girls ages 3,4,18,19 the thought has also crossed my mind also, how would the girls react if any of them started to get vitiligo, I pray every night that it don't happen but life is so unpredictable and you just never know but I guess you just have to deal with it if it ever happens to one of the kids and hopefully it won't
Amy, You are a beautiful / gifted / talented child of God (Jeremiah 1:5)....you are a Blessing~~~Be Blessed... Romans 8:28 ---its all going work out...the love inside of you for your children will give you the strength to make it...and I have just joined the site, and there is so much love and strength to draw from the members on this site. It will not be long before you are giving support. What matters most is how you see yourself!!!
My son is 6 and he may get Vitiligo......he may not. I have Vitiligo, my mother has psoriasis. In areas where she has had psoriasis flare ups, her skin is hyperpigmented. My son looked at me and said "mommy, where are my spots?" If you walk with your head held high and embrace yourself for who and what you are, vitiligo or not.....if your kids develop vitiligo, it is not a catastrophe!
Research your auto-immune diseases...........there are tons of them.............and chances are your children may develop one of them. My son has one, but I am not ruling Vitiligo out for the future. Maybe one day he will get his "spots." Either way, I will teach him that he is wonderful, and perfect!!!!
My girls know they r beautiful. They have more stregnth than me sometimes. I asked them how they will feel if it spreads and they said fine as long as they get to keep thier hair. Everyday i tell them how beautiful they r and sometimes i think i've made them a little conceited. But i'm glad. I just feel guilty at times telling them to do something i don't. But i am slowly coming out, this summer i have been more free than ever and i have to give myself props for that. One day at a time. Everyone is different in how they handle situations and i like being different in that way. Thanx Cara for being the understanding cool chic u r:)
I am a mother of two and im so scared of them getting vitiligo because i want them to beable to live a normal life without worrying about what to wear! i feel bad that i have had children and they may get vitiligo i hope and pray theuy dont xx
What a beautiful and encouraging site vitiligofriends.org is, dont know what to add to all the beautiful insights, encouragement already written for you Amy. My dear you are not alone irrespective of the fact that we are all far away from eachother, we are all here for us. No you are not a Failure, believe your girls will give you the most needed support if you can carry them along in your Vitiligo journey.
I join Cawanda to pray for you, God will strengthen you and give you the courage and boldness to pull through it all IJN, Amen!!!!
Don't feel bad! I wear long sleeves or 3/4 sleeves and i am am so sick of hearing "arent you hot"? I feel so embrassed. I miss dressing for the seasons, I love winter though I have a 5 and 4 year old and yest my daughter told me "Mommy, your skin is different". I felt like such a miserable person. Good luck to you!
hi Amy i,m not amother myself but my mother is such a great mother just like you she never had vitilgo but through all my life with vitiligo and till now she is telling me you are great. vitiligo is just destiny it's fate that we can't change all the time she is asking me not to hide just be the way i'm.people have to see how good you are .i hope my words could help you never think that you ruined your girls
Hello Amy, do not worry too much. Talk to your children (DO NOT COVER UP THE TRUTH) I have children and they helped me to over come. Start now let them know you love them and that Vitiligo is not a disease but an autoimmune disease, and by all means find a support group and take your children with you. Email me at barbara2212@verizon.net and I will send you some information. You are not a failure and know that we all here love you and will support you. I too wear long sleeves in the summer so I will not get sun burned as do many others. Please, please email me, I will also send my phone number when you do.
Replies
Dear Amy as the father of four girls ages 3,4,18,19 the thought has also crossed my mind also, how would the girls react if any of them started to get vitiligo, I pray every night that it don't happen but life is so unpredictable and you just never know but I guess you just have to deal with it if it ever happens to one of the kids and hopefully it won't
Research your auto-immune diseases...........there are tons of them.............and chances are your children may develop one of them. My son has one, but I am not ruling Vitiligo out for the future. Maybe one day he will get his "spots." Either way, I will teach him that he is wonderful, and perfect!!!!
I join Cawanda to pray for you, God will strengthen you and give you the courage and boldness to pull through it all IJN, Amen!!!!
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