Hello to my Vitiligo friends in internet land:
Does anyone else have more than one autoimmune disease? It wasn't until a couple years ago that I learned it is common for women with one autoimmune disease to have another, but I still don't know too much about it. I have both Morphea (Scleroderma) and Vitiligo and would love to talk about what has worked (or not worked) for you.
Anyone else is the same boat?
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Turns out I do have Morphea as well. The Dermatologists first concluded I had tri-chrome vitiligo and morphea. I've had it for over 9 years and it hasn't been destructive at all still only cosmetic. They didn't prescribe any treatment either. so oh well just another color.
But I guess we should all be lucky to only have a few colors, I guess you can have more...even blue!
Trichrome vitiligo has an intermediate zone of hypochromia located between the achromic center and the peripheral unaffected skin. The natural evolution of the hypopigmented areas is progression to full depigmentation. This results in 3 shades of color—brown, tan, and white—in the same patient (see Media File 1).
Marginal inflammatory vitiligo results in a red, raised border, which is present from the onset of vitiligo (in rare cases) or which may appear several months or years after the initial onset. A mild pruritus may be present (see Media File 2).
Quadrichrome vitiligo is another variant of vitiligo, which reflects the presence of a fourth color (ie, dark brown) at sites of perifollicular repigmentation. A case of pentachrome vitiligo with 5 shades of color has also been described.7
Blue vitiligo results in blue coloration of vitiligo macules. This type has been observed in a patient with postinflammatory hyperpigmentation who then developed vitiligo.
Koebner phenomenon is defined as the development of vitiligo in sites of specific trauma, such as a cut, burn, or abrasion. Minimum injury is required for Koebner phenomenon to occur.
Are you being treated for Morphea? My son will be on the Methotrexate injections for about 3 years. It has really helped him. His Morphea was dormant for about two year and became symptomatic when it crossed his hip and shoulder joints. You can see the purplish spots form a "trail" song the skin.
Good luck
Sue
No it was really odd, they didn't seem to worried about morphea and what it could do to me. I guess it's because it's been dormant for so long and they figure it was more cosmetic. I am not too concerned about it unless it starts causing problems. I will look into the injections though thanks.
KJ have they told you what some of the long term effects of morphea are?
HI Susan--
I'm so glad the Methotrexate injections have helped your son. I've been going to Mayo Clinic in Rochester, MN but they haven't mentioned anything about Methotrexate to me. Perhaps because (so far!) the Morphea hasn't been spreading deep into my tissues.Currently it's all over my stomach and legs but just looks likes bruises. I've recently noticed it behind my knees which could be more severe if it "hardens" I suppose.
Does your son notice any negative outcomes from the injections?
Kaija
I have two other auto immune diseases..hyperthyriodism and coeliac but they are easier to deal with than the vit as they don't show to the world.The vitiligo is showing up particularly this summer on my face , hands and all the way up my arms in motley patches..anyone any ideas for covering large areas of skin?( I am fair skinned)
OMG I've been searching for years about what my purplish spots could be! I've been to the dermatologist twice and had skin samples taken both times with no results given, they told me I must have tri-vitiligo (tree colors). I've had this along side my vitiligo for at least 9 years now. And after reading some symptoms on wiki about it I can maybe see some of them stemming from this. Headaches, respiratory problems, digestive. I'm so going to the doctor and demanding to see another derm.
So far besides those I haven't noticed much else, I just assumed it was another part to vitiligo. Thank you so much for posting this, keep me posted on your progress and results <3
Hey KJ, I haven't been diagnosed with any other autoimmune disease but I seem to have many other symptoms in common with things like celiac's disease, pernicious anemia, type 1 diabetes etc so think I'll make an appointment at the doc's. Haven't been about my vit since I was diagnosed when I was about 10! Have you tried UVB therapy? Supposed to be good for vit and scleroderma - I'm thinking of giving it a go... Gem :)
Gemma--No UVB therapy yet for me--the beach is my free UVA therapy though! So far I think my Vitiligo and Morphea are mostly "cosmetic" and the last time I went to my Rheumatologist/Dermatologist He only recommended some topic lotion/steroid cream. I used it on one half of my body but didn't notice any changes from the other side so I tossed it. If my spots seem to harden I will definitely try something else.
My 13 year old son has had vitiligo since he was 6 - was diagnosed with morphea about two years ago.
But his morphea got really bad this past January - terrible leg pain. He is treating with a Rheumatologist. He took Prednisone for about 6 weeks which alleviated his pain. He is also on weekly Methotrexate injections which he will continue with for 2-3 years.
He is doing much better but his morphea patches are still noticeable (but at least they aren't purplish anymore)
Replies
But I guess we should all be lucky to only have a few colors, I guess you can have more...even blue!
Trichrome vitiligo has an intermediate zone of hypochromia located between the achromic center and the peripheral unaffected skin. The natural evolution of the hypopigmented areas is progression to full depigmentation. This results in 3 shades of color—brown, tan, and white—in the same patient (see Media File 1).
Marginal inflammatory vitiligo results in a red, raised border, which is present from the onset of vitiligo (in rare cases) or which may appear several months or years after the initial onset. A mild pruritus may be present (see Media File 2).
Quadrichrome vitiligo is another variant of vitiligo, which reflects the presence of a fourth color (ie, dark brown) at sites of perifollicular repigmentation. A case of pentachrome vitiligo with 5 shades of color has also been described.7
Blue vitiligo results in blue coloration of vitiligo macules. This type has been observed in a patient with postinflammatory hyperpigmentation who then developed vitiligo.
Koebner phenomenon is defined as the development of vitiligo in sites of specific trauma, such as a cut, burn, or abrasion. Minimum injury is required for Koebner phenomenon to occur.
http://emedicine.medscape.com/article/1068962-overview
Are you being treated for Morphea? My son will be on the Methotrexate injections for about 3 years. It has really helped him. His Morphea was dormant for about two year and became symptomatic when it crossed his hip and shoulder joints. You can see the purplish spots form a "trail" song the skin.
Good luck
Sue
KJ have they told you what some of the long term effects of morphea are?
I'm so glad the Methotrexate injections have helped your son. I've been going to Mayo Clinic in Rochester, MN but they haven't mentioned anything about Methotrexate to me. Perhaps because (so far!) the Morphea hasn't been spreading deep into my tissues.Currently it's all over my stomach and legs but just looks likes bruises. I've recently noticed it behind my knees which could be more severe if it "hardens" I suppose.
Does your son notice any negative outcomes from the injections?
Kaija
So far besides those I haven't noticed much else, I just assumed it was another part to vitiligo. Thank you so much for posting this, keep me posted on your progress and results <3
My 13 year old son has had vitiligo since he was 6 - was diagnosed with morphea about two years ago.
But his morphea got really bad this past January - terrible leg pain. He is treating with a Rheumatologist. He took Prednisone for about 6 weeks which alleviated his pain. He is also on weekly Methotrexate injections which he will continue with for 2-3 years.
He is doing much better but his morphea patches are still noticeable (but at least they aren't purplish anymore)
How are you doing?
Best regards,
Sue
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