About

Gender

Female


Location

Pittsburgh, PA


Birthday:

July 4


Hometown:

Poughkeepsie


Relationship Status:

Married


About Me:

Hi there! Just found out yesterday out of left field that I have vitiligo. No biopsy has been done. It's a small spot on my temple which makes me nervous. I've been picked in childhood but finally 36 years old, have been feeling pretty ok with myself until this dx. It kinda rocked my works. Now old fears and depressed thoughts are coming intermixed with feelings of peace and acceptance of whatever will be. I find it hard not to catastrophize about things I can't control. What would be helpful is to find and give support to others who share this rather rare condition. I'd especially like to meet others that share it in their faces. I Look forward to having this groups support so I can remain strong especially for my three little ones(ages 7,3,and 1). I fear also for my children. I fear they will be embarrassed by my appearance in front of their friends when older. I also fear for their fate in possibly inheriting this (even though no one in my fam has ever had it.) I hope with this group I can learn how to embrace whatever life throws my way and not be self concious about my looks. I hope to learn new coping techniques as well as learning techniques on how to deal with stares etc (if thats ever going to be an issue). I want to be able to see the beauty and value in my diagnosis and see how I can help make a difference in others lives too. Thank you!!! Ps I've never been in an online support group before so please bear with me on how it's run


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Comments

  • Hello and Welcome !!! Glad you are here !!! I have vitiligo on my face !!! Have you tried or heard of Protopic Ointment !!! It works well for face vitiligo. I use it as well !!! Take care !!! Try not to worry too much !!!
  • HELLO AND WELCOME TO VITILIGO FRIENDS!!
  • Hello Shellbelle, welcome to  vitiligo friends, I can assure you here is the place where you get it all like no other. Being here is great and very simple. Welcome once again
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