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Birthday:

January 1


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Stavanger


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  • Vitiligo Genetic Study: Dr Richard Spritz

    By now many of you have read, heard about, or participated in Dr Richard Spritz's vitiligo genetic research. Below is his most recent report.

    If you have not participated, I encourage you to do so here and now. This costs nothing and you can participate without leaving your home.

    From Dr Spritz:
    The international VitGene consortium project, aiming to identify susceptibility genes for generalized vitiligo is the largest vitiligo research study ever undertaken. Funded by a major grant from the U.S. National Institutes of Health, this "genomewide association" study offers the best hope to discover the true biology underlying vitiligo, and thus to open up paths to new treatments and cures. The project will take 4 years, and will have three phases.

    Phase 1, taking place now, is the initial genome-wide screening stage, with 1500 Caucasian patients and 1500 unaffected peoples ("controls") from the USA, Canada, and United Kingdom (UK).

    Phase 2, (sample collection is going on now), will follow up promising results from the Phase 1 in ~2750 different Caucasian patients and controls from the USA, UK, and continental Europe, as well as in ~400 additional Caucasian vitiligo families (patients and relatives).

    Phase 3, (sample collection going on now) will test genes proved out in the first phases in non-Caucasian groups, including USA and Colombia Hispanic/Latino, African-Americans and Nigerian blacks, middle-eastern Arabs, Indians and Pakistanis, and Asians. Currently, VitGene includes 20 countries (USA, Canada, Colombia, UK, Belgium, Holland, France, Italy, Spain, Germany, Czech Republic, Sweden, Jordan, Saudi Arabia, Bahrein, Nigeria, Pakistan, Japan, S. Korea, and Taiwan), with additional sites being considered.
  • hi, Yes there is, here are some:
    Vitiligo Skin Pigment Cell Transplantation Study and Detroit-Area Vitiligo Genetics Study
    W. Lim, M.D., Professor and Director
    Multicultural Dermatology Center, Henry Ford Hospital
    For more information please contact Dr. Richard Huggins at 313-916-6964 or rhuggin1@hfhs.org

    Call for Patients: Vogt-Koyanagi-Harada Disease (VKH)
    Richard A. Spritz, M.D.
    Tel 303-724-3107
    FAX 303-724-3100
    Email richard.spritz@ucdenver.edu

    Dr Caroline LePoole Wins $1.7 million Grant to Study Immune System's Role in Vitiligo and Melanoma.
    We very much appreciate your support; We still need additional samples from BOTH patients and unrelated, unaffected 'controls'. We especially need minority study participants! If you haven't sent in a questionnaire, Click here to Participate. (you must save this to your local computer to fill out, and return via mail or email to richard.spritz@ucdenver.edu).

    YOU MUST PROVIDE FULL CONTACT INFORMATION, INCLUDING NAME, EMAIL, MAILING ADDRESS, AND TELEPHONE NUMBER. IF WE CANNOT CONTACT YOU, YOUR QUESTIONNAIRE IS USELESS.

    Please, just one questionnaire per family; if you already sent in a questionnaire, please do not ask others in your family to send in additional questionnaires. If you are not in one of the countries listed above, please do not send in a questionnaire.

    If you have already sent in a questionnaire and received a saliva DNA kit or kits, PLEASE SEND THEM BACK , and PLEASE make sure all paperwork is filled out and signed. Likewise, if you once sent in a questionnaire but received no response at all (probably because you gave insufficient contact information or moved), please send in a new questionnaire, noting that you sent one in previously. In a very real sense, this is YOUR research; we cannot do this without you.

    Richard A. Spritz, MD
    Professor and Director
    Human Medical Genetics Program
    University of Colorado Denver
    Aurora, CO 80045 USA

    Good Luck
  • Hey !! Regarding your question on finger tip Vitiligo - I have Vit very close to and touching 3 of my finger nails. I am using a steroid based ointment for it. I can see my Vit fading away - VERY VERY SLOWLY. So, if you are on any kind of steroid based ointment /cream - continued usage for a longer period MIGHT work for you. Good Luck !!
  • Welcome..
  • Welcome to vitiligo friends!
  • WELCOME!!!!!!!!!!!
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