About

Gender

Female


Relationship Status:

Married


About Me:

I am a mother of a beautiful, sweet, happy boy. My son was diagnosed at age 5 with vitiligo. At first it was only on his hands and with Protopic, he repigmented. He is 8 yrs old now and it has spread everywhere. We will be starting NB UVB soon. Praying for success. We will never stop trying to help our son and hope & pray that a cure is found for our son and all those that suffer with vitiligo. As a parent, it is the hardest to see your child with any type of illness or disease. Wishing I could take it from him.


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  • merry August 6, 2013 at 3:12pm

    hi,cheryl,the young man received treatment in our hspital,including Chinese drinking medicine,cream,balance therapy,cooperate our special machine treatment.before all his body is white,now has been cured.our hospital's technology is national torch plan project ,National ministry of science and technology supports us.the cured rate is 84.2%,effective rate is 98.6%.if you have questions about vitiligo,contact with me,my email is hhbdfyy@163.com.

  • Simon Parker July 14, 2013 at 12:26am

    Cheryl,

    There isn't a program as such that I can see apart from Dr. Karin U. Schallreuter but like I said this(in my opinion) is expensive. So far I've spent £450 on flights and accommodation to Germany for the consultation, the actual consultation price is £605 but then have costs of train tickets and transfers in Germany as well. That's all before the package price to actually fly out to Jordan and have the treatments! I'm still waiting for an exact price on this part and I've e-mailed them.

    I believe in total the whole thing is likely to cost me between £2000-£3000 but I will confirm this. I will documenting all my experiences at www.simonsvitiligoblog.com.

    Like I said before, people have had regimentation out there without Dr. Karin U. Schallreuter program. So it may be worth booking a 2 week holiday out there and just see if you have any initial repigmentation with that keeping costs down.

    Simon.

  • Christie July 12, 2013 at 4:58am
    Welcome!!!
  • Nadika July 12, 2013 at 3:30am

    Hello and welcome!!!! Glad you joined our group!!!! :) :) :) 

  • Neci July 10, 2013 at 9:33am

    Hello and welcome to Vitiligo Friends!

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