Please show your support for adopting June 25th as: - WORLD VITILIGO DAY
http://www.petitions24.com/world_vitiligo_day_-_june_25th
In a society obsessed by appearance and where physical appearance is celebrated you can feel just helpless when your appearance is threatened, often stigmatized, traumatized, and ostracized. Children are frequently teased and ridiculed by their peers. Adults experience low self-esteem, job discrimination and it interferes with relationships and marriage prospects.
Success rates of current therapies is dramatically low, variable, and not permanent. Therefore, new therapeutic approaches are warranted. With many Vitiligo patients responding poorly to the current therapies, more focus should be directed to improve non-medical consequences of Vitiligo that include
Extensive awareness, enlightenment and education,
camouflages make-ups,
self-image support,
Availability and access to Vitiligo information for all,
General support and care, to name a few.
In all, extensive Vitiligo education, awareness and enlightenment campaign is key, this is because the Vitiligo patients needs to be accepted and treated equally without any form of stigma, discrimination and segregation to enable them take advantage of other self-help like camouflage make-up, image building programs etc.
Thus World Vitiligo Day advocacy and campaign to bring Vitiligo Cause to the World Center Stage, when the whole Media Channels in the World or atleast 50% of them talks about Vitiligo on every 25th of June for atleast 3years, same day the World will also be remembering Michael Jackson, there will be significant awareness on Vitiligo and improve in Quality of Life (QOL) of the Vitiligo patients. I believe strongly that all the stigma, discrimination and segregation are all due to ignorance. The patient’s trauma, low self esteem and no confidence is also due to the fact that they are misunderstood and neglected even within the medical community.
Our hope is that by having a special day set aside, we will raise and create extensive Vitiligo education, awareness and enlightenment in the public and medical community thereby improving Quality of Life (QoL) of persons living with Vitiligo and the disfigured. There will be a better understanding of the general public, attention and care within the medical community.
Campaigning for June 25th as Vitiligo Awareness Day is synonymous with Michael Jackson's death date, (the most famous man that lived with Vitiligo and whose name the condition is being addressed as today - Michael Jackson's disease).
We continue to make an effort to raise extensive Vitiligo awareness. In India, Vitiligo Awareness is on the 19th May, in a State in USA it is April, while in another State it is July. We sincerely need your continued support for a uniform day for World Vitiligo Day. Help us raise vitiligo awareness globally, in all countries of the world.
Facebook page - http://www.facebook.com/pages/World-Vitiligo-Day-June-25th/191074134256085
Please show your support, add your name and sign the petition http://www.petitions24.com/world_vitiligo_day_-_june_25th,
The more signatures this petition gets, the more attention it will get from the media and the decision-makers.
Thank you
Ogo MaduewesiVitiligo - the way we are.jpg
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