As you may have heard I'm starting the London Vitiligo Support Group. The first meeting will take place on the 26th of July from 1:30pm to 3pm. The centre is near Stockwell Station (Zone 2), so it's very centrally located for people living in London or coming in from outside.
Here is the station:
http://www.allinlondon.co.uk/the-tube-map.php?z=c2&t=248
I created group pages with Google Groups and Yahoo Groups but I love this network, so I think I'll keep the page for the group here, since this is already a place for support and information.
You may be wondering why create a support group in London. The simple reason is because there's isn't one. I can't understand how a major world city has so little support for people with vitiligo. The Vitiligo Society has told me that people prefer socials to support groups. I think socials are great but I think there is a place for support groups, too. I have professional experience running events but like with any event, the biggest help is needing is promoting it. So please let me know if you have any ideas about getting the word out.
In terms of what you can expect, the meetings free (thanks to the centre) and there will be no more than 15 people (that's the limit, which is why it's important you RSVP). The centre is giving us a room for free on a trial basis. We will be evaluated in a few months, and the agreement will be extended if we're a success, which I'm hoping we will be.
The support group will be a place where you can express your feelings without fear of judgment. Even more, this will be a place where we can share information, because the medical community often does a poor job of addressing the needs of people with vit. Also, this is an opportunity to leave the house! Many of us shut ourselves off from the world. And that's silly. We need to reclaim control over our lives and our condition, and the best way to do that is with support and information.
I hope you'll join us, and let me know if you have any questions.
Cheers!
Alex
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Replies
I'm really glad that now we have like this group, I wanna join and wanna to come to this meeting.Thank u very much.
Take care