Does anyone just lay in bed at night and wonder why me?! I try so hard to stay positive but sometimes it gets the best of me. I really pray there will be some long lasting relief/cure one day sooner than later. When I start to think too much about it I remember it could be worse and I always pray that scenesee will be beneficial for all us one day! Good night everyone!
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i understand how you feel. i look at the people around me, my sisters in particular, and think why not them?? i'm trying to cope with this is just the that is supposed to be. i try to continue doing my usual stuff. fortunately for me it is not on my face at this point. it is on my hands, elbows and a few other spots here and there. it has always bothered me. i was diagnosed about 9 months after my first child was born. it has been almost 10 years. but when it began to show up on my knees . . . that is when i had my first real cry about it. my Mom had it and i can only pray that my kids won't.
I can relate....do you ever look at people and think wow they are so lucky to have their skin color (we take so much for granted in life until we don't have it anymore)...right now I am starting to think what else is wrong with me especially after the hep. C link to vitiligo....is something else really wrong with us that we don't know???? I am just thankful I'm 39 and married....it must be really hard for those who have had it their whole lives....I can't imagine! Many people have had it for years and not gotten a bad disease underlying from vitiligo...At least you know your not alone!!!! This site is great!!!
Well why not you? I am sure you would not wish it on anyone else, It is a strange disorder that we have, I have about 70% white now, had vit since I was 10 I am now 48. I have never tried any 'remedies; but I have hidden it as much as I can all my life, until recently when I very belatedly realised how short my life is and I am sure if I am lying on some death bed dying of Cancer or some other horrendous disease I will feel very very stupid for 'covering up my arms and legs and face due to embarassement about my skin, The most amazing person I have come across is https://www.facebook.com/#!/profile.php?id=609714579 if you say you are from Vitiligo friends, become a friend and check out her Vitiligo photos they are amazing. She is the most positive person I have come across with Vit. x
you are not alone my friend.. i believe everybody here on earth had this feeling at one point in their life and it doesn't have to be because of vitlilgo..there are wars, natural disasters, etc..
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Hello Hal, this is a poem I wrote a couple of years ago. Hope you enjoy!
Why, you ask ?
Vitiligo is what it is called , but actually it should be called vitili-stay,
cause there is no cause nor cure and it rarely goes away
Why you Ask?
Why me and not her?
Why us and not them? who knows
We persist to live our lives; some cover it up with makeup and some hide it beneath their clothes
Living in your silent prison, although it feel safe, is never going to help
Be free, liberate yourself, You are a strong amazing beautiful person
and don’t you believe anything else.
We all are living in this world recognized by most as someone who doesn’t fit in
This is the craziest thing and awkward situation that one can be in
Why is this peculiar thing happening to my skin?
Did I do something wrong?
Say a mean thing to a neighbor or a friend?
Why do people stop and stare and never let me come in
To enter a room and not have them look at me as though I’ve committed a major sin
Why you Ask?
There are no answers to help me to resolve
those feelings and the questions about vitligo and all that it involves
All I know is that this is me and my life I will happily live
And enjoy my family, friends and all the great things that life has to give.
God Bless!
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