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Why are we using these remedies to try to cure our Vitiligo maybe God wanted us this way !!!!!!!!!!!!!

Posted by Carl R. Manley on June 3, 2009 at 4:05pm

Some of us a spending lots of money on so called cures for our Vitiligo but why waste the money especially during these hard economic times, I decided to just let nature take it's course because Vitiligo started on us without the use of drugs so why are we trying to use drugs and photo light treatments to try too cure our Vitiligo, I'm a strong believer in God because I'm a person of faith and I don't think God would put more on us than we could handle, just look at it this way, even with Vitiligo we are fortunate because we still have use of our hands and feet and we don't need a wheelchair for assistance with our daily chores, so that's the perspective that we must look at if any of us complain about our Vitiligo because there's so many other worse stuff out there in the world so we are fortunate just to have Vitiligo, we need to give thanks to God because we could be blind,death,physically disabled with loss of our limbs or even HIV, so we people with Vitiligo need too just be thankful that God lets us live to be able to use a computer so that we can connect with each other, I have no complaints no more I have decided to live with my Vitiligo and embrace it, because it's a part of me that I will have to deal with for the rest of my life and the Serenity Poem reminds me of this everyday.


God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

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Replies

  • Carl R. Manley June 15, 2009 at 12:38pm
    It appears to me that Alex Greiss has some real religious issues and this is not the place to rant and rave, If you don't believe in God then that's your business, Please take your Atheist beliefs to another site, If you feel that way, Because we don't need any negativity on this site because this site is all about positivity, We just don't need the negativity to tarnish the image of the Vitiligo Friends website, If you disagree with anything that anybody says on this site you have the right too, but please don't force your Religious Beliefs or shall I say your "Non Beliefs" on anybody here because you are full of Animosity and your negative energy just does not work here, We are all friends here getting to know each other because we have something in common and that's Vitiligo and that's all we should be talking about here.Alex I understand your angry about the world situation and perhaps even your own personal experiences with Vitiligo but I think you are very disrespectful for calling God an "Old Fart" because Vengeance is mines"Sayeth the Lord" Hey Alex I wouldn't be suprised if a Lighting Bolt came down from the sky or something happened to one of your loved ones remember God acts in Mysterious ways and he will remember what you said come judgement day, Hey Alex I don't know about you but I fear God. and you should Too !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    poster-jesus_christ.jpg
    • Alex Greiss > Carl R. Manley June 15, 2009 at 1:41pm
      im not gonna get too into this. But suffice to say that trying to stop someone from forcing their beliefs onto others by forcing YOURS onto them is like trying to stop a fight by throwing a punch.
      • AMY > Alex Greiss June 15, 2009 at 6:21pm
        wow, first of all i have to say this please stop the arguing this is a site where we can voice our thoughts freely without judgement so with that said, i agree with ladyjo that when i was younger i too felt awkward of my body being a thick girl and all and just now when i'm learning to accept it i have vitiligo. It's hard very very hard. I won't get into the whole physological aspect of vitiligo as our elders should know exactly what it can do to you.If we don't get angry then who will, who will push these lazy doctors to educate themselves and find a cure! most dermatologists i go to don't even know what vitiligo is, i find myself explaining it to them. We all are free to have our own beleifs that's the beauty of freedom of speech. But it's people like alex with all his anger will open the doors to findind a cure maybe not in his life time but in our childrens lives even better. Because of his strong will of not giving up.Sometimes u have to get angry enough to get what u want that's the only time people are willing to listen. So thanks alex! Some of the older generations don't care and do just say it is what it is oh well, but u can't completly expect us to feel the same way as u do. i saw an older woman at the store the other day i stopped to talk with her,before i could even ask her if she was doing anything for it she shot me down," there's nothing u can do for it!" i even gave her the name of the site encorageing her to join she faintly smiled and walked away. That's her that's what she wants to do not me. I won't give up on a cure and neither should the rest of you.everyone has different paths in life no one alike. I do have faith in a cure, it's not like u've never heard of anyone repigmenting. We have, so that's my push to keep beleiving!!!!!!!
  • Jeff June 15, 2009 at 9:10am
    God has been and always will be a vital part of my life. There are many times he comes into my life to handle my problems, and I don’t hesitate to put things in the SFGTD Box (something for God to do), but this isn’t one. Within my faith, I believe that God talks to us all the time, but most of us choose not to listen, often because we don't like what he has to say. I’m not in denial about accepting Vitiligo. I do not think God is trying to teach me to accept Vitiligo. If so, he wouldn't have made me with so much strength, determination and resilience. He knows I'm hard headed, and I would not sit idle on my hands. I have the courage to try and help myself as well as others. I will find a cure…God willing.
    • Alex Greiss > Jeff June 15, 2009 at 10:47am
      ok whoa whoa whoa wait just a minute here. crap like this (excuse the language) is where i start to have SERIOUS PROBLEMS!!!

      those who live with or suffer with vitiligo should be angry! BE ENRAGED PEOPLE! sont just fall back and accept... accepting vitiligo to me is unacceptable. Irony! We should be angry and we should voice our anger. Im angry that in this day and age in medicine, doctors are not even able to do a task such as repigmenting vitiliginous skin. Vitiligo research doesnt see a huge amount of funding. why? because people think its not dangerous. Let me tell you... my vitiligo is very very dangerous. Or at least it was.... emotional distress leads to depression leads to fatigue and so much other crap im not even gonna mention because im on time constraints. Am i just suposed to say "whatever will be will be" and take a step back while i watch my once gorgeous skin tone start to fade unevenly? Yeah it could be worse... i could list a huge number of crap i would like having even less than vitiligo. but you know what? it can also be better! Theres a cure out there, and the longer we live in acceptance the longer we will be without it.

      I dont want to put people down on their beliefs or whatever, you can believe what you want. But let me bring up a point that has alot to do with logic. If there is an almighty, all caring, divine-willed invisible man in the sky who created and now rules over everyone and everything he's doing a very very bad job. War, hunger, famine, natural disaster, greed, torture, slavery.... vitiligo. Yeah, either God isnt trying hard enough, or he just doesnt give a shit. Maybe the old fart JUST DOESNT CARE.

      so in stead of just leaving it in gods hands like some mindless religeous robot, leave it in your hands and let it be known that theres no excuse for not yet having a cure for vitiligo.
      • Jeff > Alex Greiss June 15, 2009 at 11:07am
        I'm not sure if your "whoa's" were directed at me or at Carlton's original post. But if you were talking about my post, please read it again: I am not leaving this in God's hands, I am taking control, just as I would if I were trying to loose weight. We should be ENRAGED, without it, no change will ever come.

        I am sick of doctors that don't care about things that aren't "life threatening". They are undereducated in this area, and even the so-called dermatologists don’t know a freckle from a white patch. I had to tell my primary Doctor I had Vitiligo, dumbass he had me rubbing a foot fungus killer (Lamisil) on my face, cause he though I had bacteria attacking my pigment. That’s when I knew I had to cure myself.
        • Alex Greiss > Jeff June 16, 2009 at 7:40am
          It was obviously directed at the OP. I admire what you are doing Jeff, and should you keep us all updated, i will follow your example.

          (LOLing at the idiot doctor....)
  • LC June 5, 2009 at 2:13pm
    I agree with you about how we should be grateful that it's a skin problem and not something that effects our walking talking and etc. But It's always easier said than done. I can feel like who cares if people stare or that it's spreading more and more each day "it is what it is" but than I look at myself and get so mad because sometimes i don't want to accept that the skin color that i was born with will no longer be. It can be very hard to live with changes that are uncontrollable. I know this is a skin condition that I will and all of the other people who have vitiligo will have to live with. And all of us will handle it in our different ways. If in our life time noone had to deal with the day to day stares or if people actually only looked at inside beauty and not out side I'm sure most of us would not care if we had vitiligo or not. I have realized and learned I have no control over vitiligo nor does anyone else. I don't hate myself I just hate that I have vitiligo. I'm living with it and I have good days and bad days and the who cares days :)
  • Ogo Maduewesi June 5, 2009 at 4:57am
    i totally agree with you, but you the thruth everone is not the same in our perception, acceptance in short in all areas of life. Like me who doenst bother at all but for sun living in Africa Nigeria a tropical area. A dermatologist fell out with me once becasue I was saying boldly that I have never worn concealer and felt that I should. I dont pride or boast that I dont but its a decision I took, I would rather invest the mony in my medication, but that doenst mena that I will stop the effort of getting locally available for pple to try on.

    its the Grace of God actually, I believe we will all get there someday and the most baffling aspect is the married ones. So what happens to the unmarried like us, (dont about other countries, but to an extent pple are still highly concerned about the physical)

    A good one there Carlton
  • Lucy June 3, 2009 at 5:11pm
    Your words are true but every one has to come to that point in their own time. I also decide to let nature take its course. I never went to a doctor for treatments. I dont use make up to cover. As it spread it will take more and more time to cover. Thats why I never started covering it up. I understand what you are saying Carlton but every one dont deal with their vitiligo the same way. The hardest part on anyone I think is when you are going through the "spotty" phase. A spot hear and there most can deal with or cover up. But once it start spreading like wildfire most will get upset and they have that right to feel that way because it is happening to their body. All we can do as friends is give each other hope through prayer and compliments. We just pray for the day a cure will come and all our friends and love ones that has vitiligo can look at themselves and see how beautiful they still are. In my personal opinion vitiligo does not take away from anyone's beauty. A person's true beauty does not reside in their skin color. If you dont look good spirtually you will not look good physically. My personal note to those taking treatments continue to do what you need to do to make yourself feel comfortable but dont go too far with it where you are spending money you really dont have to spare you will then are adding to your stress levels. Stress will cause greater problems to your body than vitiligo will ever do. Live for the day you can look in the mirror and say to yourself I love me and I still look good regardless whats going on with my skin.
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