2 nights ago i noticed what looked to be the start of more vitiligo on my face. I don't really know if it starts out just a little lighter and then fades more over time, but right now its not clinically noticable. If it stays like this i can totally accept it and live my life as if it wern't there. If it fades more i will have no choice but to accept it and either cover it with make up or show myself in all my vitiliginous (i still dont know if thats a word) glory. This is a tough decision... It's about as tough a decision as deciding weather or not i should pursue 'treatment' which brings me to my next major concern.
Keeping people treated seems to be the best and most efficient menthod for drug companys to make money. There's a cure for vitiligo that the powers that be do not want the world to know about. Same thing with other conditions/diseases/disorders/disfigurement/discolorment/ilnness call it what the hell you want... they dont want us cured they want us treated. This is the reason i decided to discontinue protopic and UVB. I'm stroking too many executives.... Speaking of protopic has anyone who has tried it been warned about drinking alcohol??? I had an adverse effect when drinking and using protopic topicaly. When i decide to have a drink, i notice 3 minutes later that the areas i use protopic start to burn... why was i not warned about this?
I'm gonna pull a 180 and get back on my own topic here... Right now i'm sad that my vitiligo is spreading. I'm sad, not depressed, not in distress nor am i angry or frustrated. It is what it is, and i know i can't change it. It's out of my hands. All i can do is be myself and not lose my charecter and my spirit. Vitiligo can take my skin color, but not my mind. I'm trying so curiously to see the bigger picture. In the grand scheme of things, will i really allow myself to be consumed by my own personal hardships and selfish wants? that's a question i should probably be able to answer, but right now i cant. only time will tell. I have no faith in God nor medicine... and yet im very very hopfull. Not for a cure, nor some type of spiritual salvation, but im hopefull that i can truly learn to see life for what it is - a gift. All i can be sure of is that some day i will die. The time i have here is precious and i dont want to waste another minute worrying about my vitiligo. It's so dismal compared to the bigger picture. I can't control my skin condition... but i can control my physical shape, my diet, my activites, my future, my love life, my career and ultimately all the decisions along the way. I'm sad, yes. but i'm empowered. I'm no longer afraid... if it spreads it spreads. i have a life to live.
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bro, i have it just for a year im just lik ehh who cares i dnt rlly ne more..ive gotten so use to it and freinds and family have to so i really dnt have a reason to feel embarrassed or nething...if a complete stranger wants to be a ass and stare or ask a dumb question then my attitude changes..but for the most part im apathetic about it all...
right now am focusing on being positive on vitiligo. though its hard i will digest it slowly and know that its part of me..........though yesterday some one at work said to me that i do not need lipstick ........ such a bad joke i got hurt. but today am at work and am taking it normal. though inside me it still hurts.
I think of vitiligo like a bad ex I once had. He conquered my self-esteem, made me question my beauty. Then I dumped him. I still feel vulnerable at times, but I've learn to love beauty for what she really is. It is a gift, I agree with you. I think embracing it, that's the way to go.
wow...looks like im not alone, the vit on my hands and face is spreading too quick, within the last 2 months ive noticed several new spots on my hands, and they r growing FAST, ouch. i know i cant stop it, but still havent learned to accept it...yuk!!! i hate it.........
I hate vitiligo. I am trying not to say "my vitiligo" or "my spots" or "my condition" because I don't want to own this disease. It is not mine. If you take ownership of it then it will never go away. So much healing can come from the mind.
My attitude is bad. i ask my self why me? it doesn't exist in my family background And to make matters worse my daughter is so concerned about my lips. Am trying to accept it but its quite hard.
I'm hurting right now. I try not to let the stares affect me but it hurts so much. I feel lucky in a way, since I'm very fairskinned its harder to notice it on me, especially in the winter. My doctor told me to stay out fo the sun as much as possible but I don't want to take away the sun. I love doing sports and when you're training for a marathon it's hard not to be outside. Someday are better than others though. I just try to look at the bright side, it's not a fatal disease.
amr assaf > Heather WilcoxSeptember 24, 2009 at 2:10pm
it is not a fatal disease also its not a physical one ....its more of "social disease " , which is why we overreact with our self confidence !
haveing vitiligo has changed my life i can no longer be out side with out the sun burning me even when im in the shade it still burns my skin my doctor ordered me to only go out side at night only but it's hard not to go out during the day when u have kids. so i put sun block on 90SPF and stay in the shade as much as i can
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