Posted by Marcela on September 25, 2013 at 8:11am in Main
We live in a society that is so focused on physical perfection. People go under the knife and spend thousands of dollars to achieve such perfection. That is why having vitiligo is a struggle. I've had it for almost 20 years and I'm still going to the process of accepting it. I have spent so many hours wondering why me. It's hard not to feel a little mad when you see people with their perfectly even skin getting tan and knowing that will never be me. I have yet to meet someone with vitiligo in real life. Even though I've seen people on the streets that have it, I'm afraid to approach them because not everyone likes to discuss their health issues with strangers.
I am very happy I have found this website and feel that I'm not alone in my battle with this crazy disease.
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I'm barely 18 and I have been dealing with vitiligo for 15 years. I know what you mean by having to deal with this disease in a society where looks are everything. I am now in college and its very difficult, I don't where shorts and consistently deal with self image problems. But it helps me focus on my soul and becoming a person people love for my personality rather than looks. But yea I agree, vitiligo is such a lonely disease.
As I read your post, I thought .. I could have written that myself. Except for the part about having Vitiligo for 20 years. I've only had it for 3 or 4 years. Why me, what did I do to make this happen, why won't it go away, what can I do to make it go away .. questions I ask myself every single day. I am fortunate for many things in life, and selfishly, one of them is having Vitiligo show up later in life (I'll be 48 next month). I can't imagine having to deal with it at a younger age, based on the affect it has had on my level of confidence as an adult. People can be polite, glance quickly and keep walking past, or people can be rude, and stare as if they're looking at a freak of nature. Either way, every glance chips away at my ability to feel like the person I once was, before Vitiligo. I am also very happy I found this website. We are not alone.
True I always tell myself 'why me' especially when I see people with perfectly even skin. In the UK 1 in 100 suffer from Vitiligo so I do see people with Vitiligo but never get the chance to talk to them. I don't remember when the last time I went swimming, feel like an alien by the amount of stares I receive whenever I went swimming. I love playing football but I can't wear shorts. Its really hard to cop with Vitiligo in your youth age. Everyday I stare at my spots when I look in the mirror its so obvious people will do the same.
Yes in this age of perfection we don't fit media's standard. As you get older you will realize it will not affect you much as if you were in school or in your 20s. When in your 40 people start to degrade and people with vitiligo are similar to people with white hair or no hair.
you just spoke the truth ,hey theres hope lets all just use pro topic for ten years never miss one day ! then maybe there will be a slight difference lmao
Replies
I'm barely 18 and I have been dealing with vitiligo for 15 years. I know what you mean by having to deal with this disease in a society where looks are everything. I am now in college and its very difficult, I don't where shorts and consistently deal with self image problems. But it helps me focus on my soul and becoming a person people love for my personality rather than looks. But yea I agree, vitiligo is such a lonely disease.
As I read your post, I thought .. I could have written that myself. Except for the part about having Vitiligo for 20 years. I've only had it for 3 or 4 years. Why me, what did I do to make this happen, why won't it go away, what can I do to make it go away .. questions I ask myself every single day. I am fortunate for many things in life, and selfishly, one of them is having Vitiligo show up later in life (I'll be 48 next month). I can't imagine having to deal with it at a younger age, based on the affect it has had on my level of confidence as an adult. People can be polite, glance quickly and keep walking past, or people can be rude, and stare as if they're looking at a freak of nature. Either way, every glance chips away at my ability to feel like the person I once was, before Vitiligo. I am also very happy I found this website. We are not alone.
True I always tell myself 'why me' especially when I see people with perfectly even skin. In the UK 1 in 100 suffer from Vitiligo so I do see people with Vitiligo but never get the chance to talk to them. I don't remember when the last time I went swimming, feel like an alien by the amount of stares I receive whenever I went swimming. I love playing football but I can't wear shorts. Its really hard to cop with Vitiligo in your youth age. Everyday I stare at my spots when I look in the mirror its so obvious people will do the same.
Hi Marcela,
Yes in this age of perfection we don't fit media's standard. As you get older you will realize it will not affect you much as if you were in school or in your 20s. When in your 40 people start to degrade and people with vitiligo are similar to people with white hair or no hair.
you just spoke the truth ,hey theres hope lets all just use pro topic for ten years never miss one day ! then maybe there will be a slight difference lmao