Hi All: How is everyone doing with the Heat Wave and their Vitiligo? For me, I am so frustrated because for one, I don't like the heat, I sweat alot and with my vitiligo, I have to wear long pants and long sleeves shirts to work because I cannot find a proper cover up. Also if using the cover up, it's so time consuming and also very sticky in this weather. I am so stressed when this time of the year approaches. Worst when I see my co-workers wearing pretty dresses and short sleeves and always very curious as to why I am always covering up my body with long pants and long sleeves. They don't know I have vitiligo and I will never expose it to them or the public. I am very self conscious and it bothers me alot. I know they always talk among themselves about me, even worse, I have a good figure to wear anything but my vitiligo is curse to me. Luckily I don't really have it on my face. I question myself everyday, WHY ME, WHY ANYBODY FOR THAT MATTER has to suffer this way. I know there is worst desease out there, but why something that looks so simple dont have a cure. Why there isn't a pill one can take just to bring back the color in their skin, it sounds so simple yet so hard. Also the coverups... wasted my money on so many different brands, still cannot find the right color or one that looks flawless. I am fraustrated at the point as now I don't know what to do anymore. I have to work, I have to come out of the house, I have to be there for my children..... WHAT DO I DO?
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I don't know about you all, but I find summer kind of mentally lonely, if that makes sense. Everyone is so excited about the beach, pool, shorts, sundresses, etc...and I'm just dreading the season. I live in Atlanta so summer comes early and stays long. I force myself to get out to the pool and playgrounds so that my kids aren't missing out on anything (I am a stay at home mom), but its sad that I don't enjoy myself at all. Even more than a cure, I often wish I could just find a way to make peace with it in my head and have the confidence to go anywhere wearing anything I want. While my vitiligo isn't necessarily extensive, pretty much every part of my body is effected: hands, feet, elbows, knees, underarms, face, and even eyebrows & hair. So even if I'm covered in clothing, I'm still thinking about my makeup, white hair roots, etc. Its quite exhausting, actually! In the past few years I've been trying to "make peace" with the spots on certain parts of my body in an effort to be more comfortable in the heat. Like feet and ankles. Would I prefer to keep them covered? Absolutely. But wearing sandals and capri pants in the summer sure beats sneakers and jeans. Hang in there, Princess Singh! If nothing else, just know that you are not alone and there are people here who completely understand and are here to listen :)
I wish there is a way out. Sounds easy but yet so hard.
Kelly Ryan > Princess SinghJune 14, 2011 at 3:10pm
I dread the summers too! I was thinking of moving to Alaska haha...the summers are in the 60's, or even 50's. I live in CT. I hate not being able to enjoy going to the beach or pools during the summer.
you should all move to the UK. I live in the north of england, Manchester, and it rains a lot here and the sun is a rare occasion but when it does come out everyone is in shorts and t shirts so its hard. I wear a lot of false tans and they help but it is always obvious that it is false.
Princess Singh > Caroline HindleyJune 15, 2011 at 1:35am
Yep, so is the makeup, always so obvious........
Nothing works, everything sucks, its a shame.
Thank you Brandy. It's nice to know that people out there are listening and care how others feel. I live in NY and summer is my worst enemy. Like you I almost have it spotted different places on my body, but I am always covering up. I am not as brave to expose, cause I work and live around nosy people who is not educate at all about vitiligo . My family are the only ones that know I have it. I have two kids and I do make time to take them out, but pool is out of the question for me. My kids feel sorry for me too. I am still hoping thre is a cure somewhere, somehow. Guess for now is just hope and prayers.
Replies
I don't know about you all, but I find summer kind of mentally lonely, if that makes sense. Everyone is so excited about the beach, pool, shorts, sundresses, etc...and I'm just dreading the season. I live in Atlanta so summer comes early and stays long. I force myself to get out to the pool and playgrounds so that my kids aren't missing out on anything (I am a stay at home mom), but its sad that I don't enjoy myself at all. Even more than a cure, I often wish I could just find a way to make peace with it in my head and have the confidence to go anywhere wearing anything I want. While my vitiligo isn't necessarily extensive, pretty much every part of my body is effected: hands, feet, elbows, knees, underarms, face, and even eyebrows & hair. So even if I'm covered in clothing, I'm still thinking about my makeup, white hair roots, etc. Its quite exhausting, actually! In the past few years I've been trying to "make peace" with the spots on certain parts of my body in an effort to be more comfortable in the heat. Like feet and ankles. Would I prefer to keep them covered? Absolutely. But wearing sandals and capri pants in the summer sure beats sneakers and jeans. Hang in there, Princess Singh! If nothing else, just know that you are not alone and there are people here who completely understand and are here to listen :)
Brandy
Nothing works, everything sucks, its a shame.
No Im a stay at home Mom, but my husband works in the city. I wasnt that impress with Microskin, but the girls that work there are awesome
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