I also feel the same way. In the last 4 years, I have lost 40 pounds and starting lifting weights to gain muscle. Therefore, I would love to wear tank tops to show up my toned arms and shorts to show off my legs. However, because of the Vitiligo , I feel that I cannot.
Every once in a while when I have time and can get an appointment, I go and get myself a spray tan, the kind where someone actually sprays your entire body. This works really well ,(not perfect) but it is as close to having my pigment back as I can get. For two days, I then enjoy wearing what I want and even bathing suits.But for the rest of the year, I have to accept not being able to do this.
Well, as the guy from Detroit said in our last online meetup, everyone has something they are struggling with that may not be visible. I think those are powerful words for us to remember when we are feeling down about Vitiligo. We could instead have something that will terminate our lives and have to be thankful that we don't.
P.S. By the way, not everyone turns completely white from Vitiligo. My father died when he was 70 years old and he was still two colors.
I feel the exact same way. I live in Miami so for me it's been just dreadful every single summer because I want to go to the beach so bad! It's 3 mins away! I want to feel the sand like I used to. It's so freakin hot too and humid! I haven't worn shorts in 10 years because when I did my vit would get very red and I would freak out.
Yes I feel exactly ths way wen I dress I wear pants and long sleeves and hide it wen I wear capris my ankles show and ppl ask questions and I think ppl wuld think I'm weird and not pretty if I showed it so keeping it hidden untill I can't anymore.. Ur not alone..
I guess I am one of the few who doesnt think about what I am wearing. The only thing I dont wear are shorts and that is because my thighs are flabby!!!!! I really wonder what the difference is though.....is it that I have had vit for so long or what? You can see from my pictures that my vit is pretty extensive. I am black and the only places I have pigment is on my face, arms and legs. I really dont think twice about my skin when I am dressing. I am more self-aware of my weight than anything else. I will say again....self confidence is key. I was out this weekend and got hit on by multiple people. Vitiligo did not stop anyone from finding me attractive. My confidence though made me even moreso!!!! And no I am not out there saying I am gorgeous, but a little confidence goes a long way!!!!
I feel the way you do every day. I am especially self-conscious when going through a restaurant drive-through and have to hand money to the cashier. I am always waiting for them to recoil in horror. No one has yet which means I'm the one with the problem about it. I can't wait for it to completely be all over my hands and up my wrist because then if I wear long sleeves, no one will know I have it. Summer is so hot and I do wear tank tops etc. but I can almost "feel" where the vitiligo spots are, like they are glowing for all the world to see. I hate this disease yet I know it wouldn't bother me so much if I knew that people knew what it is. Instead, I know that most people are wondering.
hi amy! i also know how you feel. im confident to the point where i will wear tank-tops, shorts, and dresses but when it comes to the point where people stare and start to talk i become very uncomfortable, especially when standing in lines i know people behind are starring i always catch them and the feeling is unbearable. that was during the summer. but where i live school just began and i only plan to wear long sleeves!!! despite the heat =/
I feel the same way that you do. There are so many pretty and cute dresses, shorts, and capris out there and I won't wear one. My 11 year old always tries to get me to wear dresses and other clothes but I refuse. I have vitiligo on my legs, feet, hands and elbows. I can't help the things that are out in the open, but anything else I want to cover up. I saw a really attractive african-american woman in the store once and she had it on her legs and in her face. I admired her because she had on a very professional business suit which consisted of a skirt and it was summer time. She was not afraid to be herself. I hope to be like that some day.
I know ezactly how you feel, or at least I think I do. I've been wanting to go swimming for a long time but I am still very insecure about the white spots on my back and shoulders. I've been looking into the dermablend for the body which Is supposedly waterproof. Maybe that's something you might want to try. People can say who cares what others think but it's alot easier sad than done.
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Every once in a while when I have time and can get an appointment, I go and get myself a spray tan, the kind where someone actually sprays your entire body. This works really well ,(not perfect) but it is as close to having my pigment back as I can get. For two days, I then enjoy wearing what I want and even bathing suits.But for the rest of the year, I have to accept not being able to do this.
Well, as the guy from Detroit said in our last online meetup, everyone has something they are struggling with that may not be visible. I think those are powerful words for us to remember when we are feeling down about Vitiligo. We could instead have something that will terminate our lives and have to be thankful that we don't.
P.S. By the way, not everyone turns completely white from Vitiligo. My father died when he was 70 years old and he was still two colors.
I feel the same way that you do. There are so many pretty and cute dresses, shorts, and capris out there and I won't wear one. My 11 year old always tries to get me to wear dresses and other clothes but I refuse. I have vitiligo on my legs, feet, hands and elbows. I can't help the things that are out in the open, but anything else I want to cover up. I saw a really attractive african-american woman in the store once and she had it on her legs and in her face. I admired her because she had on a very professional business suit which consisted of a skirt and it was summer time. She was not afraid to be herself. I hope to be like that some day.
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