New experience for me

Today was a bit awkard for me at work. I was sitting at my desk working away when I heard the TV and I heard the word VITILIGO. At firsts I thought to myself are they actually talking about Vitiligo on tv?! As I started having a million thoughts running thru my heard. I realized that every single person in that waiting room was starting at me and whispering among themselfs and pointing. I could read there eyes as they expressed different emotions such as, pity,confussion, curiosity, etc etc. I just wanted to run out of the room. I couldn't hide it (primarly my vit is on my face and neck) and I wasn't wearing any make-up. After feeling are of these mixed emotions. I thought to myself this is who I am i shouldn't have to feel ashamed or embrassed or scared of anyone. I am a normal human being just like everyone else.

So instead of hiding from it. I sat there and watched it with my patients. After the show was done. I felt the need to futher education them. So i asked them if they had any questions. This one lady came up to me and started asking me about treatments and how i deal with it. I started to share my story with her and the journey i've had with vit. I then realized that she just started to develope a patch on her forehead and recommened her the vitamins and having a healthy diet is key and to use make up to try to cover it because u can clearly tell it bothers her. As many of u may know i didnt have any one or know anyone that had vit to share my experience with or to express how i felt. Or even to go to for advise i didnt have the support system then like i do now. I'm glad that i was able to her. In the end my bad morning turned into a blessed morning. =))

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Replies

  • Nice love it you are brave and beautiful!!!

     

  • What healthy types of foods do you eat? are you vegiterian? Vegan? or just on a healthy tip? and Do you know if alchohol has any adverse effects on Vit?  Or any recommended vitamins that I should take? Thanks so much!  You should put more picts up so that we can see you! Nice way of owning that situation!

  • At some point or the other we all go through stares and questions that most of us cannot deal with. Good for you, you did good and you were very brave. Sometimes I feel like not to wear any make up on my hands and legs and just ware the clothes I want to wear but yet have to build up the courage to do so. I try as much as possible to conceal my vitiligo and avoid questions from people because some can be very ignorant and very much not educated on this and may think that they can catch it from you. I don't like people asking me questions about my white spots so I hide it all the time by makeup or long sleeves and long pants - What a life ha!!!!!
  • Wow, that's nice because I don't recall ever hearing something about vit. on tv! But congrats on your boldness :)
  • What you thought was going to be a bad day turned out to be a blessed day :-)

  • nice going ..tht was really brave of you,,,,,plus ur AWESOME ...anyways have a gud one ;)
  • As many of you know I've had my vit for about 14 years now.Lately my vit has really taken off this last summer and I'm nearly all white.Its the few remaining darker spots that have people really confused. That has been harder for me to explain.
    Its really hard for me to give advise on this forum because everybody's situation is different. I figure you can either embrace it or hide. I choose not to hide from God or anyone.

    My buddies now call me Snowball... I kinda like it.
  • Beautiful one Jennifer, you did the very best thing even though I know its not easy, thank God for your boldness and for educating such people around there then. Thanks for sharing
  • to have vitiligo is not a shame , to relax and have a good mood is very important for this kind of disease
  • Congratulations! It's so difficult to go past the stares of people to actually talk to them. You did good. Thanks for taking the initiative and SITTING THERE. I would have found the nearest exit. It's not an easy thing to deal with people trying to hide and stare, but you know they are staring any way, and the ignorant questions are the worst.
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