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my 5yr old has vitiligo.....pls help me with an advice...!!!!!!!!!

Posted by babu on January 24, 2012 at 8:25am in Main

hi,

my daughter 5yrs old is suffering with vitiligo from the past 1 year... she has spots around ankle,near left eye and on the both legs in symmetrical pattern. currently we are using unani medicine (from crium hyderabad), though there was a small betterment in existing patches, but there are many new ones popping up .. apart from unani medicine we are currently using elocon as an external application once in 3 days.

i am very much worried about the side effects these steroid creams might cause..

 can anyone suggest me with a better treatments which are especially helpful to children with vitiligo?

 

 

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Replies

  • Joyce OB July 23, 2014 at 3:21pm
    I like Layla's comments, I had vitiligo spots on my forehead for about 8 months. I am trying herbal treatment now starting two weeks ago from Merry Li clinic, I have not seen any improvement yet, I will let you know the result later.
  • Layla July 23, 2014 at 6:10am
    Hi Babu,

    I am a 27 years old female and have had vitiligo since I was 22. I have tried every type of treatment out there, spent ridiculous amounts of time, energy and money on them. Unfortunately, all unsuccessfully. The best thing I can tell you to do for your daughter is to empower her and teach her to love herself just the way she is. From my own experience, the best treatment is confidence and self acceptance. I found that trying treatment after treatment was taking more of an emotional toll on me than it was worth. It made me more depressed and upset that I had vitiligo because it made me focus on it and the fact that instead of going away it was spreading. I think at 5 years old the mental impact of trying treatment after treatment to try to get rid of it is going to have long term, damaging effects. Personally, I think it will make her feel that something is wrong with her and that the vitiligo is something that has to go away before she is adequate. I honestly think the best thing you can do is teach her that she is perfect just the way she is. Use it as a way to help her celebrate her differences that make her unique. It is also a great way to teach her to have compassion towards other people that might have conditions, appearances or disabilities that make them different from 'normal' people.

    Best of luck,
    Layla
    • Annie Carignan > Layla July 23, 2014 at 8:08am

      I agreed with that too, but as a parent you have to make decisions for an other person, and it's surely not easy. We really considered doing nothing else other than making sure our daughter feels good about being different. But you  always in the back of your mind have a little voice saying, what if something can help our child to get rid of her vitiligo, and what if we do nothing about it and in few years from now, she is asking us why we didn't work on it at the very beginning? 

      The fact is, there is success stories out there, and we just decided to at least try something and see if it's works. Anyway on a kids you don't have that many safe options, but it's really hard to just looking at the vitiligo taking over your kid.

      Sure thing is you have to be careful by choosing the right words, and not acting like vitiligo is the end of the world, because it's not!

    • Johny > Layla July 23, 2014 at 6:30am

      That's excellent advice. How did you manage to truly love yourself and the condition? I'm still working through that x

  • mritunjay joshi July 22, 2014 at 5:23am
    Don't use any medicine for 5 year old baby they all harmful 1st tell where r u from then special remedies for child are provided in liquid for in India has impact
  • allanpowell July 19, 2014 at 12:10pm
    Hi babu, the best way to re pigment is UVB narrow band if you want quick result
  • Annie Carignan July 19, 2014 at 5:50am
    Hi Babu, my 4 yrs old daughter has vitiligo. We decided to go with Protopic and steroid just to give it a try. As you probably know, the faster you react with the new spots, the better. I totally agree that we need to find the inner trigger, but I believe also we need to take care of the spot and try to get pigments back as soon as we can. This said, we changed a couple of things in her diet, no more dairies, trying to cut the gluten, and juicing. My daughter has spots on her right leg, with the topical creams along with the supplements pills from the Merry clinic, she got almost all the pigments back on the biggest spot on her leg. Her vit is still active though I won't lie we haven't put the puzzle together yet, but I'm glad we can see some improvement. We don't plan to have her on Protopic and steroid for a long period of time, but honestly right now I feel good about it, she is 4 yrs old, and as my derm always says, when they are young we have the best chances to slow down the spreading.
    I hope you will find something who will help your child,
    Annie
    • babu > Annie Carignan July 20, 2014 at 11:45am

      Hi Annie,

      Thank you for your reply. Good to know that your daughter is repigmenting. my dermatologist is suggesting Dexamethasone tabs and UVB. we are not considering steroids now, thinking to start UVB. We are also trying to figure out what is the internal trigger,no clue yet... :( we have tested her for celiac, thyroid, vitamin levels ..etc everything is normal .

      please share the steroid name you have used .

      wishing your child all the very best in her treatment.!!

      thanks,

      Babu

      • Annie Carignan > babu July 21, 2014 at 5:45am

        We are seeing a pediatric dermatologist who is very dedicated to respond to all our questions. I was very hesitant to start steroid at first but she reassures me. We are seeing her every 4 weeks, so my daughter is on a very close watch. The steroid we are using right now is Fluocinonide 0.05%. We won't use it in a long run for sure, but since my daughter is not cover with vitiligo and the patches are small, is not a problem to use it as a topical cream. 

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