I have been seriously thinking about spreading awareness. What if there was a group of us that traveled to places; schools, events, local gatherings, concerts.... The best form to spead information is word of mouth. We could create a rally of some sort, speak directly to the people. We could get the word out and share our experiences with the world. There are so many possitive reprecussions that could fuel our movement. Along this path we could create a foundation that supports research in finding out more about Vitiligo. Maybe even finding a cure. It is important to human kind and nessecary to all of us with this condition to do our part if we want to see an end to ignorance and discrimination against our disorder. We are the median between discrimanation of all races!!! If you're heart knows this is right you will feel it. I really believe we can make this happen... Just like musicians, maybe even using music performance as commom ground and a tool, we could set up a tour. I have many ideas on how to make this happen, but I need you're support. Myself, like many others want to do something great in the world and here is our chance. I am putting this out to the universe. I will continue to help lead us in a possitive direction. We all have so much love to spread, I hope this inspires and brings about change for the better. This is a message intended for the all the world to hear. Sincerley thank you all for being who you are.
You need to be a member of Vitiligo Friends to add comments!
i will help and travel! i have a lot of words of wisdom to help motivate people in to realize they CAN live a normal life! email me erikaramirez92@yahoo.com i have a couple of documentary ideas im thinking of doing! since there aren't cures yet i would like to focus on helping people feel comfortable about themselves first!
I am musician and auditioning for some touring bands. This is what I love to do. So when I get hired and go on tour every one can rest assured I will do my best. This is going to be my most powerful medium to spread awareness to my audience members. I have also been contacting big acts(acts into helping others) to try to help spread the message.( I have performed with a band that has been on M.T.V) I truly believe I was put on this earth to make a difference. It is in my heart and soul to help people.I will let everyone know how my journey unfolds. In the words "rally" I did not mean evryone has to pull together, although it would send a more powerful message. I am talking about being on stage in front of thousands with maybe only a handfull of people dedicated to a cause I believe is worthy. It can and will work I have had large audiences in the palm of my hand. When you are the one on stage people listen they have no choice.
love ur motivation too!! I have always thought there was a better way to initiate research and development into finding a cure, but I doubt a rally would work. Please don’t take this the wrong way CW, I support your idea. But even if you get every member on vitiligofriends to show up at one location (like Vegas or Palm Springs), unless a few members are prominent doctors, I can't see it bringing any change.
Part of me thinks the change will come when we find the right natural cure, which doesn't require the intervention of a pharmaceutical company (or the doctors that work for them). The reason there is no cure is because the drug companies don't make money for curing diseases, they make money managing the symptoms (or pain). If there were a drug that took away Vitiligo while you were on the drug, but made it come back once you stopped taking it, we would have a solution/drug available right now.
So CW, how can we get the ball rolling? How can we take what Steve started and expand? Perhaps we should push for a feature on Oprah, or the Doctors, or Dr Drew….or who ever else is in the mainstream media circle. Maybe we should set up a reward fund for anyone who can come up with a proven cure. We can start putting money into it, invest it and multiply it, and if no one comes with a cure by a set date or dollar amount raised, we take that and fund our own research team. Can we have a national Vitiligo research center like they do in the UK? …okay, enough rambling from me.
Replies
Part of me thinks the change will come when we find the right natural cure, which doesn't require the intervention of a pharmaceutical company (or the doctors that work for them). The reason there is no cure is because the drug companies don't make money for curing diseases, they make money managing the symptoms (or pain). If there were a drug that took away Vitiligo while you were on the drug, but made it come back once you stopped taking it, we would have a solution/drug available right now.
So CW, how can we get the ball rolling? How can we take what Steve started and expand? Perhaps we should push for a feature on Oprah, or the Doctors, or Dr Drew….or who ever else is in the mainstream media circle. Maybe we should set up a reward fund for anyone who can come up with a proven cure. We can start putting money into it, invest it and multiply it, and if no one comes with a cure by a set date or dollar amount raised, we take that and fund our own research team. Can we have a national Vitiligo research center like they do in the UK? …okay, enough rambling from me.