Hi guys! I have recently been diagnosed with vitiligo. So I would appriciate if someone could tell me if there is any chance to cure, or at least stop it from spreading for a long time?
Is there anyone who could share some sucsses story about vitiligo, it would mean a lot to me, since I am going through a realy hard time facing myself with the fact that this disease might be incurable...
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Traditional Chinese medicine and new treatment to cure vitiligo :jenny.yan.wong@gmail.com,4 days to try our good effects free of charge.
Jenny to you have a website or any information about what you offer to share with us?
Hi!! My name is Brent. I was diagnosed with vitiligo in 1997. I had a spot on the back of my neck and a little gray hair coming out of it when I was around 18. Nothing changed or spread for years so I didn't really think much of it. In 1997 about 9 yrs later i started noticing depigmentation everywhere. It spread like wild fire and i tried everything available at the time. I tried psoralens and uvb. I tried nutritionists and took vitamins till they were making me sick. I ate like i was supposed to and nothing stopped this horrible diease!! I fought till i couldn't fight anymore and lost hope. It has been a devastating 27 yrs dealing with this and what it does to you mentally as well!! I quit trying to heal and just deal with it. I self tan everyday as a concealer and try to live with it as best i can!! It is very hard to deal with on a daily basis for all these years!! I wish there was a cure but I got so tired of fighting a losing battle!! Nothing seemed to stop my spreading!! I don't have any pigmentation left. I was finally glad that it all faded to make it easier to conceal.
Hi Brent. It seems you haven't tried rubbing a walnut on your skin while standing on one foot and holding a rabbit's foot. That must be the reason and it's your fault for not trying these other things ....
Of course this is said in jest, to say, "My friend, I'm right there with you, by your side." We have traveled similar paths, though you have done more and tried more than I, and for longer.
Thank you for sharing your story. It is inspirational to me. While I am eager to learn of new advancements to cure us, it is indeed inspiring to read stories of strength and absolute courage, as yours is nothing less.
When I see my upper lip, and lower, yielding to this disease, my eyebrows, my armpits, my chest that I no longer can wear a shirt open to the second button, due to scalding and stares, and when I look at my hands and see it spreading, and when I turn to the mirror and see the disease populating my back with its ravages, I search, and I search, in vain, for a cure.
And then I read your story and I sit down beside you. Not telling you what to do. Not telling you not to stress. Not telling you that you didn't consume turmeric or a Vegan diet or a not enough UVB or, well you get the idea.
Brett, there's a story about Job, in the Bible, where the desperate man was stricken by many losses and much pain. Several came to him about not being righteous enough or not doing this or that. In all, what would have comforted Job most was to sit beside him, as if to say: "Good morning, Job. I hear you, brother."
For this Vitiligo that has us, I have found no cure because I have deduced that with the world's 50 million people who suffer from this disease, surely one in fifty million would have cracked the code and would have posted viable evidence of their cure and share it with us here.
Alas, we are only 1 percent of the world's population, lest a large pharmaceutical spend its time on us. That's less negative and more factual than it sounds, I believe.
People with vast resources have tried to find a cure, from rubbing walnuts to skin grafting, to tattoos, to more fish less beef, to ... well, you know the score.
So, I'm here by your side, looking up at the stars. It sure is a beautiful world. I'm pleased to make your acquaintance, Brent, and, though I regret that you have Vitiligo as you do -- now that you have it, I'm glad you and I and Steve and the other folks here are in this together rather than trying to figure it out alone.
Tom
I´m reading Tom's post and it is deja vu all over.
16 years ago I was diagnosed with vit and started treating spot with Clobetasol, then Elidel and then Tacrolimus as topical steroids with plenty of sun exposure, vitamins and minerals (b12, folic, E, Zinc, Cu, Glutathion, Alpha Linoic acid, Resveratrol, gluten free, etc)) and photo enhancers like lemmon, khelin, mopsalen, sesderma melon extract, piperinne and finally UV phototherapy. All these treatments work great but only where you have normal skin with normal melanocytes.
About 4 years ago I decided to avoid sun in order to reduce the contrast between normal and vit skin and started using base to conceal some of the lesions. It has helped me go on with my life trying to go unnoticed.
It is hard to maintain hopes for a real cure, after so many false promises. A few years ago thought that with Dr. Poole and Dr. Harris we were close, but that has faded. I also follow Dr. Bordignon, but haven´t read scientific paper about his research yet and so far it looks only as a nice hypothesis.
Sorry for being negative. We all have to try every option, since dermatologist insist that some people get cured. I'll keep an eye for the next alternative that makes sense.
Ja mad,
Never let them brand stark realism with negativity.
You'd be right there in line, in front of me I'm certain, to explore something that looked promising to you, as you have.
Courageous is what you are. Courage is not knowing what's around that corner, and still turning it. We have, and will continue. Few roads lead anywhere in this Vitiligo town. Can't blame ourselves for traveling them, but sure as hell aren't going to continue to drive to the end of the cul de sac if there ain't nothing there but a circle.
Waiting for a better GPS.
Cheers,
Tom
Ja Mad,
I do understand your frustration regarding cure promises.
Regarding Dr. Poole (and Dr. Harris), I never believed in that. They bought those genetically modified rats from a Lab and applied a "medicine" to revert it. The rats never had vitiligo. They only reverted the disease they had "created" in the rats, other than vitiligo.
Regarding Dr. Bordignon, he is in the 4th round of his trial. He is currently adjusting the concentration. I hope he succeeds.
So far, the best we can do is to follow a functional treatment. The hard part of following this regime is the fact that one has to do a lot of actions AT THE SAME TIME. If one skips one. or just think it's not a big deal, the result is not accomplished.
Actions can be seen at: http://www.vitiligomap.com/treatment/how-to-treat-vitiligo
regards,
Flavio
Thanks Kevin for your suggestion. I checked her blog there are a lot usefull informations, in my oppinion one of the best blog related to this subject.
HI ,
I can`t talk about complete cure but yes stop spreading is Possible with Ayurveda , i started using Ayurveda 4 Years ago when i see white patches near tip of fingers . from then i not see any new spots and my old spots some still not responded and re pigmentation seen on some spots ... my edges of lips still not responding ... i have more 4 years to use this treatment .. i am not applying anything till now on spots ..
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