Hi!! I have had vitiligo since i was 7 years old. I'm now 28. My relationships have always broken up over the same reason- my insecurities.
I would like to talk to other people - girls i suppose who have vitiligo in their genital area like i do and how they cope with it???
Do you get jealous over other people who don't have vitiligo? ? I finally met the man of my dreams and almost 3 years later he can't deal with my insecurities anymore. Everytime there is something on tv or facebook etc with naked girls I get really jealous because they have perfect skin in their genital area!!
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Having vitiligo on my face was something that scared me very much. I don't recall the genital area being affected at that time. I can remember telling the physician how frightened I was about how the disease would affect my romantic life, especially because I was a single person. As it turned out, I opted for depigmentation so it is no longer a concern of mine because my skin is uniform in color. Nevertheless, I do empathize with what you're going through. I always tear up when I do consultations with my vitiligo clients --I identify with and feel their pain. I feel your pain, and I am truly sorry this happening to you and everyone on this site.
Hi, Amy!
I realize this is a delayed response, but I’m new here and wanted to comment. As of now, I only have vitiligo on my genitals. It first appeared about 10+ years ago. My first physical partner pointed it out, and from that moment on, I associated nothing but shame with it. I’ve been so self-conscious about it, and I have also been so jealous of guys with “normal” genitals. I have started to get on better terms with my vitiligo, but it’s been baby steps and is still very difficult. All I can say is hang in there, remember that vitiligo doesn’t define you, and know you’re not alone. Please don’t hesitate to message me if you need someone to talk to. Peace and love, Jay
I have vitiligo in my genital area. I had been in a relationshion for ten years when my vitiligo appeared so it's too easy for me to say that it does not affect my relationship if i suddenly became single, i'm sure it would be something that would bother me.... Especially when came the time to be intimate. But honestly, i think it bothers us more than them. I cannot imagine a guy suddenly not wanting to have sex because of a white patch on the genital area!!!
Hi, Amy. I think you'd really like the book Intimate Connections by Stanford professor David Burns. It's not about Vitiligo at all, but it's about healing our sense of self in relationships with others, and it's profoundly valuable. I've been thinking about doing an online seminar about the book's concepts to this group. If you're willing to find a copy ($5 new here in the US, so hopefully not too expensive there), I'd really like to know what you think of it and if it helps you as much as it did me and I think it will our Vitiligo group. I run online conferences and webinars for my work, so it would be easy for me to do something for our group...
Is that book available in india.I have also broken relations because of my insecurities.I don't know if he could see my vitiligo, but I saw it every second and felt low about myself.
It's bothering me so much
This one simple disease has no cure till now for gods sake.I feel all hopes come like tide and slowly goes back.All false hopes.I hope Mia theory would be bringing cure, but that is also , I don't know the status, Flavio days it is the only hope.Dr mordignon is working on it.but not sure, due to funds.why not a cure now.Too much waiting
I have vitiligo on my forearms and I decided to get tattoos to cover it up well that didn't work it didn't make them worse just change the color on them .I have a guy I'm talking to for 6 months I'm afraid to tell him I have Vit. I'm so insecure with my body I'm afraid he won't talk to me after I tell him . So I know how you feel... but there is a make up called Microskin its expensive but its worth a try it will cover the spots up
Replies
No worries now. You can keep saving your relationships tight. Vitiligo is such disease making so much of worries. But nowadays vitiligo is completely curable. Many people took Ayurveda treatment for vitiligo and got complete cure. For the treatment visit: https://padanjaly.com/leukoderma-vitiligo-treatment.htm
Having vitiligo on my face was something that scared me very much. I don't recall the genital area being affected at that time. I can remember telling the physician how frightened I was about how the disease would affect my romantic life, especially because I was a single person. As it turned out, I opted for depigmentation so it is no longer a concern of mine because my skin is uniform in color. Nevertheless, I do empathize with what you're going through. I always tear up when I do consultations with my vitiligo clients --I identify with and feel their pain. I feel your pain, and I am truly sorry this happening to you and everyone on this site.
Wishing you success in resolving this issue,
Jackie
yes..dis is painful fact.... i faced too....
I realize this is a delayed response, but I’m new here and wanted to comment. As of now, I only have vitiligo on my genitals. It first appeared about 10+ years ago. My first physical partner pointed it out, and from that moment on, I associated nothing but shame with it. I’ve been so self-conscious about it, and I have also been so jealous of guys with “normal” genitals. I have started to get on better terms with my vitiligo, but it’s been baby steps and is still very difficult. All I can say is hang in there, remember that vitiligo doesn’t define you, and know you’re not alone. Please don’t hesitate to message me if you need someone to talk to. Peace and love, Jay
Hi, Amy. I think you'd really like the book Intimate Connections by Stanford professor David Burns. It's not about Vitiligo at all, but it's about healing our sense of self in relationships with others, and it's profoundly valuable. I've been thinking about doing an online seminar about the book's concepts to this group. If you're willing to find a copy ($5 new here in the US, so hopefully not too expensive there), I'd really like to know what you think of it and if it helps you as much as it did me and I think it will our Vitiligo group. I run online conferences and webinars for my work, so it would be easy for me to do something for our group...
It's bothering me so much
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