Posted by Tonia Martin on September 1, 2009 at 4:40am
I have had vitiligo for 6 years and I believe this is the lowest point that I've ever reached. I'm so consumed by this condition that I feel like it is taking control over my life. I'm trying to stay positive, but as soon as someone treats me badly or does something (drop my change in my hand or try not to touch me) I fall back into this mindset. I've never felt like this before. I used to go out with friends and have lots of fun and now I just go to work and come home. I would like some suggestions from the people who know what I'm going through.
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I feel the same way!! There have been times when people have been afraid to touch me and have been so rude about my skin. It's hard, i would be lying if i said it wasn't! Just the other day i told a man about vitiligo and he laughed. He said " what like an ailien"? So yeah, but i didn't let him get to me because he doesn't seem to be well educated. I try to think of the good things in my life and go from there.There are times that i want to just crawl in a hole and die but something just keeps pushing me forward. God doesn't give you anything you can't handle right? All of us on here are very strong and good people and there must be a reason he choose us. Sometimes i feel i will never be okay with it but i pray to god everyday that he will guide me in the right path, that's all you can really do. I hope you feel better and remember that you have all of us, you will never be alone in your feelings of frustration and sadness:) Keep your head up:)
Thanks Amy, reading your reply put tears in my eyes. I'm so glad that someone thought of this site. We know that there are other people out there just like us - but at least now we can connect and help each other. I hope you stay positive and I'll try to do the same. I gotten deeper into my religion and pray everyday - maybe that was part of God's purpose. Thanks for your reply.
I stay positive and motivated by helping others. I surround myself with positive people and things. I work as a cashier and I come across people that will either place their money on the counter vs placing it in my hands and when the transaction is complete I still tell them to have a blessed day and smile . I do this not because its part of my job but because I refuse to allow their want- to -be - ignorant attitude take hold to me. I talk to people about my vitiligo. A few months back I created a flyer with my pic and discussed my vitiligo in it and gave it to people. Now Im working on promoting Vitiligo Awareness in my community.
Wow - that's a great idea. I do believe, just as you do that knowledge builds understanding. I'd rather people ask me than to be dilusional about my condition. The one thing that I have noticed is that children have a better understanding than adults in a lot of cases. Once a child asks you what happened, and you try to explain it in a way that they understand, they move on with ease.
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Thanks for your response beautiful!