Well now it is time for hands, I went through a major improvement in the overall coverup speed, and hands ...
Now I understand well why nobody ever found a way.
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Well now it is time for hands, I went through a major improvement in the overall coverup speed, and hands ...
Now I understand well why nobody ever found a way.
You need to be a member of Vitiligo Friends to add comments!
Replies
Subsequent to Steve's reply I too feel that I have been too preemptive in the matter.
Mr xvitix has never asked us to take his treatment. He has only showed the progress, by way photographs, made by him in developing a cure for vitiligo. He has consistently refused to divulge details about his treatment and has not offered it to anybody on this website. He has just dropped a few hints here and there about his treatment and asked those curious enough to figure it out themselves from his posts. Like he uses the word homeopath in one of his post meaning he may be treating people by homeopathy or combining it with other treatments.
In this hue of vagueness it's very difficult for anybody to get any benefit out of his discussions. That's what most of us are here for to see if something else would work for us. To know if someone has regained complete pigmentation. Apart from the usual friendship and support.
It will be like that only until xvitix shares his treatment. In my opinion there is no better person than Steve to share it with. The decision is totally xvitix's.
Finally, I want to say is that from the day when this discussion began I gained two new friends in my friend list and they are sitting quite happily there side by side. They are - Flávio and xvitix. So I guess in time they will be friends here too.:)
Saurabh,
Being preemptive is always better than being corretive. Don't worry about it.
Sharing info in a Vitiligo Forum is the most important thing in order to find out a cure or a relief for this disease, since there are too many independent minds working together.
When I moved from Brazil to USA, 3 years ago, I saw vitiligo start spreading like crazy. No one was able to provide any real helpful consistent information at that time. No doctors (including the best ones in the USA). No forums. No miraculous books.
I had to collect most of the available pieces of information in the world like: medical papers, books, forum posts, doctor's statements, etc. Similar to a puzzle that I'm stil working on.
I met many generous people around the world, who gave me a lot of insights and help.
When vitiligo started reversing, after many trials (always based on studies), I made a promise to myself , as follows:
-No vitiligo sufferer would need to spend longer than a day to have access to good info to start untriggering/reverting his/her condition.
Since then, It's been my mission, i.e. to MAP this disease and spread reliable treatment information!
So, it's hard to me to accept a behavior like we saw here, because in my opinion, there is *no excuse* that can justify a refusal of treatment information to someone that begs desperately for any help like us.
Thanks again Steve for facilitating this sharing of good information. Your platform is the best!
This website is not a full democracy (I retain a lot of rights as the creator which are built into the software), but it does operate as a democracy in practice. I do not delete or censor members unless their behavior violates our non-commercial policy, is just spam, is sexual or discriminatory, or is otherwise inappropriate for our family-friendly site.
Otherwise, while I may not agree with what someone says, I will defend their right to say it.
We have a choice here. You can continue to fan the flames with XvitiX or you can ignore him. I do not see anything he has said which is demonstrably false. It may be said that he is not being generous or thoughtful of those frustrated with Vitiligo who would like to know more about his protocol, but that is not, in my mind, justification for deleting a membership. Just ignore him if you are feeling this way.
Attributing motive to another individual is very tricky ground. XvitiX may he operating from a profit motive, and if that becomes clear, that violates our non-commercial policy, and I will delete him. But just because we believe that is his motive does not prove it to be so.
There is no doubt the language is an issue here. It may not be the whole issue, but it is an issue. I can think of a lot of reasons that someone might be reluctant to talk about a specific protocol that does not have to do with profit. For example, if that protocol involved specific tests or understandings of individual triggers, and that was a core part of successful treatment, then announcing one part of the treatment could lead a lot of people to start running and trying it without success, or to claim it was not accurate, and to take up a lot of time and energy of the researcher when he or she needs to focus on refining the core understanding. That may or may not be the case with XvitiX, but it is plausible to me that someone would want us to know they were working on a treatment, that there is hope, but that to engage in a discussion about it now would be problematic.
Again, whether or not what I have just said is true of XvitiX, I don't believe in deleting members. Flavio will remember when there was a strong call to delete his membership, and I refused. Again, language barriers were involved, and malice was attributed to him when I do not believe it existed. His consistent contribution here is a reminder of the need to be careful in this regard.
Hi Steve, thank you,
I tried to be very open about my intentions, I guess too open to be true. But also I gave hints about my job and position (ı can prove these), and also reasons why I am dealing with vitiligo. I used a x nickname to avoid traffic. I went through really rough times due to some info I provided in a Turkish forum. I tried to make that clear also. What I realised any "new info" I provided bumeranged as new sophisticated ways of robbing vitiligians. So my new strategy 1) help locals, 2) help only young ones, 3) do 1 and 2, if you really are comfortable about the intentions. But there is ABSOLUTLY NO MONEY INVOLVED. (Not mentioning my own spending). As you said, maybe I find a new way to tell about it to the people, but it is not now for apperant reasons. Moreover, I am still working on it, trying new approaches to find more info about dynamics. Yes there was pretty good improvements, all inspired by some thinking and accidents. It is not cure in a bottle yet (yes hands are good improvement). Anyhow I am a happy man with my life, family and kids. Of course also making a good living. The fact that I am an ex-vitilian, stres and its management is more important for me.
Anyway, thank you again for being objective on the matter. I see why this community is groing.
You're welcome. And there are others here who would like to help you. Perhaps you might consider reaching out to individuals privately to see if having others working together with you at the same time might not increase to possibility of something that can be of benefit to all.
Yes of course, that is a natural proceeding. That is why forums are invaluable. When I have time, I go in a read experiences of others, sometimes ı spend hours. Not making sense for them, but may spark something for me. There are people I exchanged emaills and a number of them in the friends list as well. Communication is very difficult, because of vitiligo, our behaviour changes (even this might offend some but it is unfortunately true) and reasons are also obvious for that. Information no matter how much I try to contain will not be contained. It spreads very fast, not even limited with the country borders now. Language may be a problem though. I have read russian forums by translating. Google makes information spread much easier for sure.
What I am trying to understand, lets for a second assume that I know the cure, what would be the motive to ban me from the forum? That is I cannot answer for myself, then starts assumptions...
Anyhow I will try to be more helpful as time permits, but feel like burnt out for this summer..
Thanks again, keep up the good work, maybe me or some others will be revord in the future.
Steve,
I will always support your decision, despite the fact that this case is crystal clear to me.
You have built an amazing network platform, and I'm very grateful for that.
Best regards.
Riaz,
Can you please share the contact information of the doctor.
Thanks!
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