Posted by Sherry Hebert on September 21, 2009 at 5:49pm
I was first diagnosed with vitiligo almost 3 years ago. It first appeared as a white spot in my arm pit.The doctor did not act very intersted when I showed it to him, so I went for a second opinion almost a year later and I received the same diagnosis. I was told to be thankful it wasn't cancer and to go home live with it by wearing long sleeves, long pants, sun glasses and do not get in the sun at all. I was also told there was no treatment worth trying. Since that time my feet are losing color and I can see signs of vitiligo on almost every body part, but at the time of this writing none of them have turned that milky white like the spot under my arm. I have a couple spots on my face that seem really bleached out, but none of my friends will admit to seeing them.
I am just curious about other people's experiences with vitiligo. How old were you when you got it, how fast did it spread, how has it affected your relationships with the opposite sex.
This disease gives you a hopeless feeling. Doing nothing is so hard. Has anyone had any positive experience with any treatment? What about the articles posted on the internet about black urad beans or black chickpeas. Is anyone familiar with this, and if so what do you think about it. If those reports are true then why aren't we all eating chickpeas and getting friends of the vitiligo foundation to find out more about this treatment. It sounds very safe, unlike everything else I have read about.
I know this is a long entry, but I don't have time to write often and I just have alot of unanswered questions that I am trying to deal with.
Thanks for your comments.
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Hi Sherry,
I wanted to say hello to you once again.
I have not had any experience with treatments, so I can't comment on that issue.
But, please keep hope alive, don't become a victim to vitiligo, be a survivor. You are so much more than your vitiligo.
Even though I have lost all my pigment, I still have hope for a cure someday, not so much for myself, but for our children in this world.
Blessings to you, Sherry!
Patty
Replies
I wanted to say hello to you once again.
I have not had any experience with treatments, so I can't comment on that issue.
But, please keep hope alive, don't become a victim to vitiligo, be a survivor. You are so much more than your vitiligo.
Even though I have lost all my pigment, I still have hope for a cure someday, not so much for myself, but for our children in this world.
Blessings to you, Sherry!
Patty