Stares and comments leaves no puncture on anyone, its all in the mind. You decide what to hear and what not to hear even when it is said into your ear.
Vit has left me a very confident and positive person. Lessons learnt from Vitiligo cannot be learnt from anywhere esle. Its really a very unique and wonderful experience.
Above everyother thing that has happened to me in life, am so grateful to God for Vitiligo.
If it goes, fine. If it stays, fine. Whichever way am living my life and thanking God for life and Hope.
I will sure succeed, living positively!
You are right that stares don't puncture, but I know that I hate to be stared at like some freak. I understand that it's a startling thing to view at first, because many don't know about it. After MJ's death, it seems that people have become more aware of it, even though he mentioned that he had this about 20 years ago. It is something personally that I have to overcome. I was already a shy person before and it's made me even worse. I don't like going places and I often find myself hiding my hands and wearing concealer to hide the spots on my face. I've never been one to say "why me" and I certainly haven't matured to the point where I'm able to thank God for my condition. The only thing I have done is thank God that my condition is not cancerous. I do admire you for your approach to it and I hope that I get to that point one day.
Ogo Maduewesi > Gregory S. AsherSeptember 20, 2009 at 5:03am
I understaand how you feel Gregory, its not an easy thing and I know how tough it was for me before I got there. I am hoping for a day that we will all throw whatever to the wind and move on with our lives irrespective of what the society feels or says about our unique spots.
I believe you will get to that point someday if you set your mind to.
i've had it since i was 7 or 8 and i'm 20 now... and still haven't really accepted it like most of you have... i don't go outside to often... but it has made me uh better person... i understand how people with worse diseases feel... it seems like i have uh different perspective from everyone i know... like for example...
my mom me and my brother
my mom ask if we seen uh white lady( since we black you know ) sittin on he porce and everyday day we walked pass her house we spoke to her but she never replied what would we think of her... the first thing my brother said iz she was racist... i was like maybe she's blind and def...
i see things in uh different light... like i never really accepted havin it i'm not good in places with alot of people( i actually spend alot ot time alone)... but i enjoy havin it cuz it made me who i am...
@ Gregory, I really understand how feel, the truth here is that its there and really hiding or being frustrated has done no one any good rather it may just trigger it.
My idea to it is that the best I can do is to get as much information I can get about Vit to manage and fight. I am living my life o and cant imagiene me there again (trumatised and depressed), I go out to anywhere I want to now (cant wait to make some money and really treat myself like a princess), wear whatever am comfortable with.
Around here in my country, the women are so worried if they will ever find love, but you know what that is the least of my worries because I dont see why I should be worried about some ignorant and refused to understand persons. Though in other words that is why I am doing what am doing in my country to educate them because it is not enough to feel bad when people comment, segregate and avoid Vitiligo simply because they are ignorant, I saw a need to really educate and create awareness so persons distressed by Vitiligo can live better.
Maybe you go on and educate as much as you can while supporting others living with Vitiligo in anyway you can, believe your attitude towards Vit might just change.
Peace and blessing I agree life could be worse. You could have AIDES CANCER NO ARMS ETC. I have learned alot with this dis-ease. I have learned to be -eased with my self and love. If you don't be-eased you will be mentally, physically, spirtually and emotionally diseases all your life. Bless!
Vit has definitely left me frustrated. I've had it for 8 years now and I've watched it spread quite rapidly over that time. Once the patches got very noticible, I didn't go out as much and only went to work and back. I still struggle with it at times because I find my self hiding my hands in my pockets or folding my arms to conceal my hands if I'm in a place that I've never been before.. The wonderful thing is my true friends have accepted me and all say that they don't even notice it because it's just a part of who I am. Tthat really made me feel better about myself.
Replies
I believe you will get to that point someday if you set your mind to.
my mom me and my brother
my mom ask if we seen uh white lady( since we black you know ) sittin on he porce and everyday day we walked pass her house we spoke to her but she never replied what would we think of her... the first thing my brother said iz she was racist... i was like maybe she's blind and def...
i see things in uh different light... like i never really accepted havin it i'm not good in places with alot of people( i actually spend alot ot time alone)... but i enjoy havin it cuz it made me who i am...
sorry i don't spell to well
Thanks for your comment, we are here for us all and loving us all.
My idea to it is that the best I can do is to get as much information I can get about Vit to manage and fight. I am living my life o and cant imagiene me there again (trumatised and depressed), I go out to anywhere I want to now (cant wait to make some money and really treat myself like a princess), wear whatever am comfortable with.
Around here in my country, the women are so worried if they will ever find love, but you know what that is the least of my worries because I dont see why I should be worried about some ignorant and refused to understand persons. Though in other words that is why I am doing what am doing in my country to educate them because it is not enough to feel bad when people comment, segregate and avoid Vitiligo simply because they are ignorant, I saw a need to really educate and create awareness so persons distressed by Vitiligo can live better.
Maybe you go on and educate as much as you can while supporting others living with Vitiligo in anyway you can, believe your attitude towards Vit might just change.
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