Because most of the population is unfamiliar with vitiligo people look and stare at us and some of them even whisper to others when they approach us I think that it's so ignorant of people when they do that I don't mind when people take a quick glance but when they stop and stare that's when I have issues with people it makes me wanna holla out "Damn take a picture it would last longer " just like anybody else I have my good and bad days with vitiligo too !!!!!


You need to be a member of Vitiligo Friends to add comments!

Join Vitiligo Friends

Email me when people reply –

Replies

  • And to make matters worse , some of the people we live with and work with also stare at us. Some i 've even explained to them my condition and educated them about vitiligo but still there is a way they stare at me and i feel bad and out of place....................oh my God i hate them!!!!!!!!!!!!.

    I expect people i live with most of the time to at least get used of the way i look.
    • Wow Josephine I don't know what to say. The people I live with are so used to seeing me and my vitiligo that they act like it's invisible to them or better yet they act like I'm invisible......lol

      • Indeed u seem invisible.........................lol. Hello Carl, just remember that life must go on regardless of the vitiligo.So if these people cant stay with us and accept us as we are let them go hang.!!!!!!!!!!!!!! because we are here to stay.
        • That's right Josephine we are here to stay so like us or leave us we people with vitiligo could really care less !!!!!!!!

          • i really experinced all this sometime isay ok that;s me and people must accept me the way iam other time i say why me??
  • I think it's only human to stare. Perhaps this all explains my shyness when out in public? I literally avoid eye contact unless I have a reason to address someone when out in public. I guess having been the subject of many a gander in my time on this earth, I try my best not to pay it forward :-)

    Oh, and if those two jerks that hang out at the pool at my apartment complex happen to read this, 1) I CAN HEAR YOU, 2) I don't "always look angry", you just only see me in the heat of the day and I can't be bothered to wear sunglasses to the gym and 3) comment on my yoga mat one more time and I will seriously knock the beer can outta your hands. Thanks.
    • Ali your such a FEISTY DIVA....I love it.....lol.
    • you stole my heart with that 2nd paragraph. i lol'd literally.
  • Thank you, Carl! They say that 1% of the population has it, but I have only seen it on one other person, except for me and you guys. Very few of my well educated friends even knew what it was when I got it. It was too bad that Michael Jackson did not own up to it. He really could have publicized it for the rest of us!

    I live in hot tropical Hawaii and used to be so proud of my nice even tanned skin. I hate having to wear long sleeves. I am a college teacher. Now I am sick of wearing make-up in my arms and hands, and have started telling the students, "Say, I'm unusual...what you see is my calico skin, it's called vitiligo. Stare all you want and then you'll get over it!" I 've found it's easier to just tell them about it at the beginning rather than make them worry and stare.

    Oh well, I just wonder where this is all going.

    Betsy
    • Betsy you are so right sometimes it's just better to educate people about it and then once they get used to it they will stop asking about it I know this is true because I experienced it first hand

This reply was deleted.