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Are you open with people that you have vitiligo?

Posted by Karen on July 2, 2011 at 3:40am
I'm newly diagnosed and I've only told a few people....I don't know why? I guess I'm still accepting it myself...I will tell people I have an autoimmune disease...but I won't tell them what it is? I will tell people I trust and know they will not share my information as gossip. But I do have to say I can get on this forum and share, I love this forum! It's easy to get on here and talk! Go figure!

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Replies

  • April maksymonko July 30, 2011 at 10:21am

    I am because it just is easier then having people stare

     

    then again my good friends all say the same thing....you can't even notice

     

    love my friends :)

  • Nikky Floyd July 29, 2011 at 7:32pm
    I've never tried to cover up my vitiligo, but I've always had a hard time being open about it. I'm more open now than i used to be. if someone asked me about it in private, i didnt mind telling them i had vitiligo. but when someone asked me about it in front of other people i'd get very self conscious about it and just say i dont know or something. It's something about actually talking about it that i get awkward. My vitiligo is very visible and I am comfortable with it.
    • Karen > Nikky Floyd July 30, 2011 at 5:13am

      Thanks everyone for sharing!!!! It's great that we can genuinely share with each other! I wish we could all go out to lunch and meet each other! Too bad we all live all over the U.S. and farther......

       

      @ Remeta you are beautiful!

  • Lisa July 29, 2011 at 2:09pm
    No im not open and don't know how to be open. I don't like to talk about it. I am 33 and had this since I was 2. I wish NO ONE to have vitiligo. I still cant deal and I dont understand why does anyone have to have it????
  • Ogo Maduewesi July 26, 2011 at 7:24pm
    I am a screen with my Vitiligo, remaining on my forehead and do not wear camouflage.
  • Vitiligan Princess July 26, 2011 at 6:54pm
    I am not ashamed at all and i walk the streets proudly, i am 33 and have had vit since i was about 17, ive never dealt with being made fun of, im questioned and i educate, if someone stares i stare back and smile, about 50 percent if not more of my body is covered, i have it all over the place, i allow boyfriends to see it, and friends to examine it, If your ok and confident with yourself, you will be ok, vitiligo is no big deal to me, it makes me special and sets me apart from everyone else, people always remember me :0) other people are comfortable with my vitiligo, because i am comfortable with it, sure you can see it, and you can see me coming, lol, it makes me sad that so many people have emotional issues due to the vit, i read but did'nt understand it till i got on this site and saw how many people were so sad, it hurts my heart, i want all of your pain to go away thats why i wrote on this forum, you guys are all beautiful, and your people like everyone else, we all deserve to be treated fairly, and you should not let vitiligo stop you from doing anything, be you, run the streets and grab a vitiligan friend for shock value, let people see you, educate them, the only way we will ever be accepted is if we accept ourselves, feel free to friend me or send me messages if you need some support or just someone to talk to, we're gonna be ok guys <3
  • Imani Payne July 23, 2011 at 4:41pm
    I am 16 and I have been living with it since I was 6 years old. I wore makeup for maybe my first 3 years of elementary school, but I eventually became tired of it. I've wore no make-up for at least 6 years now! I think the fact that I was diagnosed at such a young age i don't really see it as a big deal. This is me, this makes me who I am and I honestly wouldn't have it any other way. I honestly don't think anyone should hide the fact that they have vitiligo, a genuine person will accept you regardless of how you appear on the outside. It took me quite some time to come to feel this way. I didn't completely accept and become comfortable with the fact that I have vitiligo  until my 8th grade year. Because I accept it now, I feel like my life is so much more easier and complete. I no longer worry about what people will think of me and if people will approve of me.  :)
  • manish pandey July 22, 2011 at 5:56pm
    well...you can see..i dont have my own profile picture ..i use an alias...i am seriously not open to any new person about my condition ..though i am very open to my friends , family. i wish noone ever suffer this skin disorder..
  • Michelle July 21, 2011 at 6:07am

    mine started at about 25 years of age, I'd been married for 4 years.  It started very gradually and neither of us was very alarmed.  It started going crazy in my 30's.  My husband has never cared and never talks about it, ever. I care when I know it is starting to spread, I get very itchy and then start treatments.  I should be more consistant.

     Our daughter was born with a port wine stain that covers half of her face, that was our focus, I single handedly changed Kaisers insurance policy (for northen California) back in 1989 to allow treatments to be covered by insurance, prior to that it was considered a cosmetic treatment and was told they had a psychiatry department for that.

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