Hi guys,
Often others speak about how we must be feeling and what we are thinking and this is very evident in medical research around our condition-one we have to live with 24/7...We can, where possible, express our opinions and this is such a great opportunity to help inform people who determine what is a success in terms of treatment and how noticeable Vitiligo is, post treatment-also, for every complete questionnaire-they will donate £10:00 to The Vitiligo Society-which is an excellent cause...
Please see below and spread the word-they are a research based group in Nottingham-called HI-Light
Best wishes,
Ish x
Greetings from the HI-Light team,
We would like you to help us test a new patient reported measure of treatment success for vitiligo. We want to know whether this new measure can be used to capture treatment success in future clinical trials of vitiligo treatments.
We need people with vitiligo (or their parents / carers) to look at images of vitiligo before and after treatment, and say whether or not treatment has, in their opinion, been successful.
If you would like to take part, please click on the link below which will take you to an online survey.
You will be asked a few brief questions about yourself (or the person with vitiligo on whose behalf you are completing the survey). You will then be shown an array of "before" and "after" images (there are about 40 sets of images) followed by two questions for each set of images.
For each set of images, you will need to imagine that this is your vitiligo before and after 9 months of undergoing a treatment and then answer the two questions (about how noticeable the vitiligo is after treatment, and whether you think treatment has been successful).
The survey will take around 30-45 minutes to complete. We appreciate that this is quite a long time to spend completing a survey, but this number of questions is necessary to be sure that the measure of treatment success is an accurate one. To thank you for your time, we will donate £10 to the Vitiligo Society for every completed survey we receive.
Please note we will not share any data we collect about you with any other parties.
Clicking on the link below will take you to the introductory page of the survey.
https://www.surveymonkey.com/s/G6JSFWZ
Thank you for your time,
Selina Tour
Dr Jonathan Batchelor
Professor Kim Thomas
On behalf of the HI-Light Team
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