Posted by Carl R. Manley on September 22, 2010 at 1:00pm
It's funny because you never realized how many people actually have vitiligo until you come to a website like this one, were a very numerous bunch if I must say so myself and it feels good to know that theirs others who know exactly what I'm going thru and can sympathsize with me just imagine if all of us with vitiligo had a computer or access to the internet that would be great but I'm happy to be on a website where people who just like me can express their views, opinions or whatever when it comes to vitiligo and I love this site and all the people on it
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Hi Carl,
I know what you mean about finding this website. I had vitiligo for a long time before I found the vitiligo international support group and went to a conference in Burbank, California. It was such a relif to meet other vitties tht understood what I felt and then to find out I was not alone. Having these friend on that website even gave me the courage to go to work without makeup on. I had been held hostage by vitiligo for over 20 years, I would not go out of my house without having the makeup on. Vittie friends are the best.
Carl R. Manley > Alma McMillanSeptember 22, 2010 at 2:41pm
Dear Alma reading a note like this makes my heart smile with great joy :-) and it's good to know that a website like this and meeting others with vitiligo gave you the courage to go to work without any make -up on and if a website like this can make even one person get the same courage that you had we know that it was not designed in vain and thank you Alma for being one of my many vitiligo friends it's truly a pleasure and I hope to meet many more
Replies
I know what you mean about finding this website. I had vitiligo for a long time before I found the vitiligo international support group and went to a conference in Burbank, California. It was such a relif to meet other vitties tht understood what I felt and then to find out I was not alone. Having these friend on that website even gave me the courage to go to work without makeup on. I had been held hostage by vitiligo for over 20 years, I would not go out of my house without having the makeup on. Vittie friends are the best.
Dear Alma reading a note like this makes my heart smile with great joy :-) and it's good to know that a website like this and meeting others with vitiligo gave you the courage to go to work without any make -up on and if a website like this can make even one person get the same courage that you had we know that it was not designed in vain and thank you Alma for being one of my many vitiligo friends it's truly a pleasure and I hope to meet many more