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Support Group-Baton Rouge, Louisiana

Posted by Courtney Simon on July 12, 2010 at 6:10am
Hello family!

I am coming to you today because I need some serious advice. I am thinking very hard about starting a support group for people living with vitiligo. I have no idea where to start, or how to start, but i sincerely, believe God has placed this seed in spirit because I can't seem to get rid of it. I am humbly asking any members who has started one or working on one to please help me with what ever advice you have to give.

Sincerely,
Ms. Cookie

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Replies

  • Cara Twillie July 13, 2010 at 5:21pm
    I am not that far away from you.....I would definitely participate!!!!!!!!!!!!
  • Ciney B July 13, 2010 at 12:38pm
    You are the testimony walking around silly...lol Like me, God is going to use you to show others how good he is and despite your situation.. THROUGH HIM ALL IS POSSIBLE. Your level of confidence, hope, and how God has been good to you and brought you threw it all. YOU ARE what they need to see in the streets...LIVING AND LOVING LIFE. Be that walking campaign, the walking inspriation, the hope they dream about having.

    Your special Miss Cookie and like I said this type of attitude you can't buy in the street or off the shelf...lol I think about how hard it is for others to accept, cope and deal with vitiligo. Im sure all of that can be a bit overwhelming in a room 10 to 1. And the last thing you want is to be hosting a pity party or anger party or whatever...smh! Girl ya'll be in there ready to burn some shyt down over someone looking at your side ways...lol (but you get what I mean)

    Collect your ducks, line'em up, gather your info, do some research, and start out building a rapport one by one with those you come in contact with who has vitiligo. Spreading the word about this site is a start...(HOW DID YOU FIND OUT ABOUT IT...LOL), create some flyers and post up at school, stores, dr. offices and stuff like that. Because from my understanding most don't even like coming out the house. And last, be the most inspiring walking campaign for "Diva's with Vitiligo" you can be because I think that’s what people really want to see and the question will pour in.
    • Cara Twillie > Ciney B July 14, 2010 at 4:43pm
      Love it.....we need shirts!!!!!!! "Diva's with Vitiligo" on the front and "I dont live with Vitiligo, Vitiligo has to live with me" on the back!!!!!!!!!!!!!! Purple shirts.....cuz we are royalty!!!!!!!!!!!!!
  • Connie July 13, 2010 at 8:47am
    Having a location to hold a meeting maybe the MD office or a local church that would provide the location to meet. Determine what day of the month and what time of the day is good for young people, working folks, students or the older who do not drive at night (Make it near public transit). Maybe find a sponsor like a local pharmacy rep who would donate money for refreshments or a local bakery who would give something to draw people in (food is always a draw where I live). Talk with your dermatologist to see if they would start recommending the group to his/her patients with vitiligo. Set an agenda or a mission of the group ie. if you are a social group that will plan outings or a group that will lobby for more research etc. I think what you are trying to do is great! Hope these idea are not too basic as I want to be supportive!
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