Hello all! I just wanted to post that my steroid cream, Desoximetasone, is definitely working. It has been 1 month since I started applying it every day and the freckling is really starting up! My doc is giving it 3 months to see how much repigmentation I get and so far I am really excited. I have not had any side effects from this so I am hoping I can stay on it until most of the spots are gone.
I also tried Protopic but after 3 months nothing happened. What a waste of time. So if you are looking for some treatment that works, this cream will work. It just sucks that I have to spend so much time putting it on all the spots...there are a LOT of spots.
If anyone wants to discuss it, please let me know. Take care! :)
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Erica:
So nice to hear about your success. Very encouraging. I had been sharing our success in this forum for the past 4.5 years. Due to work load and other life priorities, I had been away from site site in the past 1 year. But, I will visit this forum regularly.
For my 11 year old daughter, we used Protopic during the week days, and a mild steriod during the weekends (typically, only for 2 or 3 weeks at a stretch). It worked well so far. We have NOT seen any side effects. Vit of my daughter disappeared, 95%. Hence, we are ONLY on protopic now. Our research shows, Protopic alone does NOT work, it has to be aided by something else.....Try searching some discussions threads I posted in the past for additional info.
Hi James...no you cannot get this over the counter. It is by prescription only so you would have to ask your doctor for it.
I am interested in trying it, can you get it over the counter ?
That is so great! I am so happy when I hear these stories. Protopic only works on my face so when I get insurance I will have to mention this to my derm.
Amanda, yes, the Protopic is the only thing that can be used on the face. The steroid cream cannot be used on the face. Thank god I dont have the spots on my face...it was spared so far!! But I have a giant tube of Protopic on hand at the first sign of a spot on my face. (OK I said face way too many times in those sentences!! haha)
I cannot tell you how thrilled I am that there is some repigmentation going on. I hide most of my serious emotions from my family and pass it off like I am not bothered (especially in front of my kids) but it really, really affects me. I hate looking in the mirror at my underarms, I am horrified at what I see. I cry every day about looking like a monster someday if this gets completely out of control. So for anyone out there suffering the way I am, I sure hope you can give this a try!!!!!
Take care...Erica
Thats great... thank you Erica i try also the cream you have said.. i tell you also what if change on me.Did you take folic acid and vitamin d?Thanks for the information...I am new here
I fell how you feel also....for now i dint go out...
Take care
Its me
kris
Kris...yes, I also take a ton of supplemental vitamins but nothing was working until the cream. I take the vitamins for general health but not sure they impact the Vitiligo at all as I have been taking the vitamins for almost a year. I do use Vitamin D, Folic Acid, Copper, PABA and a multiple vitamin for skin/hair every day.
Thank you Erica..i try your cream also but i must go to the dr. first to prescribed me that kind of cream.....only this year my vit spread almost 10 years its stable but now its starting spreading again...Thank you..
hello Erica. thanks for the information. few years ago i also had applied a steroid cream on my white patches. it worked verywell. but the pharmacy stopped manufacturing that ointment. i felt so helpless. i think i should try ur steroid cream. could u plz tell me the brand name of the cream.
Debasmita - sure! Here are all the details of my cream:
Name: Desoximetasone
Manufacturer: Taro Pharmaceuticals
Type: Cream 0.25%
I hope this helps! Let us know if you start using it too. Take care!
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