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Segemental Vitiligo

Posted by Kish on July 3, 2018 at 4:30pm in Main

Hi All ,

 My Daughter ( 6 years old )  started getting white patches on one side of body .

 They are on her right hand wrist , Right Hand , Right Chest , Right Neck and Right Eye .

 On the wrist it was a bit more all the other areas are small .

 They started appearing from last 6 months . 

 She is on Tacrolimus 0.1% and Topical Steroid Creams . 

 

 We are observing few patches are becoming normal ( repigementation ) . 

 Do we have any one here with  segmental vitilgo and how long it continued to grow before becoming stable .I heard segmental vitiligo will become stable after 1 year or so . Is it true . 

 What are the best treatment options for segmental vitiligo and why does it happen ?

 

 Can we prevent it to grow bigger or starting at new locations ?

 Any help with segemental vitiligo in children wil be helpful .

 Thanks to meet all lovely people here .

Regards,

K.

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Replies

  • varun July 13, 2018 at 1:24am

    Did you ever try Traditional Ayurveda? It is really effective for so many persons. You can try it and that may not create any after effects.

  • Sue July 6, 2018 at 5:04am

    It sounds like your dermatologist is doing all the right things to help control her Vitiligo. A low dose topical steroid will help stop the spreading and the Tacrolimus will help with repigmentation. Children seem to respond better to treatment, especially on the face.

    Is she using UVB treatments also? 

    • Kish > Sue July 7, 2018 at 1:40pm

      No she is not using UVB treatment .

  • Robot July 5, 2018 at 6:38pm

    My suggestion:

    FUNCTIONAL TREATMENT PROTOCOL (dosages should be discussed with your Doctor):



    1- 9W UVB-NB Phototherapy 3x a week (expose each patch separately)



    2- Daily Supplementation Suggestion:

    • Vitamin C (By GNC) ⇒ 50mg

    • Vitamin K (by GNC) ⇒ 10mcg

    • Vitamin E (by GNC) ⇒ 200IU

    • Vitamin D3 Cholecalciferol (by GNC) ⇒ 2000IU

    • Beta Carotene plus mix of carotenoids (by Pure Encapsulations) ⇒ 25000IU

    • Complex-B (by GNC)

    → B1 Thiamine ⇒ 15mg

    → B2 Riboflavin ⇒ 20mg

    → B3 Niacin ⇒ 25mg

    → B5 Pantothenic Acid ⇒ 50mg

    → B6 ⇒ 25mg

    → Biotin ⇒ 300mcg

    → B12 ⇒ 250mcg

    → Folate ⇒ 400mcg

    • Fish Oil - Omega 3 (any mercury-free brand) ⇒ 1000mg

    • Selenium (by GNC) ⇒ 100mcg

    • Zinc (by GNC) ⇒ 20mg

    • Copper (by GNC) ⇒ 2mg

    • Calcium (By GNC) ⇒ 500mg

    • Magnesium (by GNC) ⇒ 300mg

    • Iodine (by GNC) ⇒ 80mcg

    • Manganese (by GNC) ⇒ 2mg

    • Chromium ⇒ 100mcg

    • Molybdenum ⇒ 25mcg

    • Vanadium ⇒ 15mcg

    • Inositol ⇒ 80mg

    • Lutein ⇒ 1mg

    • Boron ⇒ 1mg

    • Silicon Dioxide ⇒ 2mg

    • Choline Bitartrate ⇒ 80mg

    • L-Tyrosine ⇒ 300mg



    3- Daily Anti-Oxidant Suggestion:

    • R Lipoic Acid (stabilized) or ALA (by Pure Encapsulations) ⇒ 100mg

    • L-Glutammine Powder (by Nutrabio) ⇒ 3g

    • L-Cysteine Powder ou N-Acetyl Cysteine (by Nutrabio) ⇒ 600mg

    • Grape Seed (by GNC) ⇒ 100mg

    4- Daily Anti-Fungal Suggestion:

    • Probiotics (by Hyperbiotics, e.g. PRO-15) ⇒ 1 capsule with at least 5 billion CFU of the beneficial bacteria

    5- Topical Creams:

    • Protopic 2x a day on face patches.

    • Elidel 1x a day on the other patches.

    • Apply Pseudocatalase 2x a day (before 9AM and after 5PM). After application, wait 15 minutes and then take a 10 minute sun bath or 30 second UVB-NB phototherapy session (talk to a doctor before undertaking any phototherapy). Avoid Pseudocatalase cream on the spots that are being treated with Protopic (use only one or the other).



    6- Drink a 8 oz of green juice daily (green apple or kiwi, spinach, celery, cucumber, collard, watercress, and kale).



    7- If you are not able to do a food allergy test, you should at the minimum follow a gluten-free diet.

    Disclaimer:

    Content available on this post is for informational purposes only and is not a substitute for professional medical advice. Only your healthcare provider should diagnose your health problems and prescribe a treatment. Your reliance upon whatsoever obtained by you at or through this post is solely at your own risk. The statements made within this post have not been evaluated by the Food and Drug Administration (FDA).

  • Robot July 4, 2018 at 6:08am

    Hi Sasi,

    In my opinion, based on the patch locations, it should be treated as NSV (non-segmental vitiligo).

    I believe that the reason why it's being segmental, might be due to the dominant right side that suffers more with frictions, trauma, etc.

    Also recommend the following:

    -vitamins,

    -minerals;

    -anti-oxidants;

    -UVB-NB Phototherapy

    -Pseudocatalase cream (once a day)

    Regards.

    • Kish > Robot July 4, 2018 at 8:39am

      Hi Robot ,

        Thanks for your reply.

       As far as I know NSV appears on both sides of the body in a symmetrical pattern . In my daughter case ,  we see the patches only on one side of the body but at different locations .

       What Vitamins , Minerals do you recommend ? 

      Thanks,

      • Sanjay Bhattacharjee > Kish July 4, 2018 at 11:14pm

        Apart from the treatment suggested by your doctor & Robot, you may try some homeopathy medicines also side by side.  It would help re pigmentation faster. Please let me know if interested so that I can give you details.  It worked for me.

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