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Protopic -- how to use it -- & lymphoma

Posted by Idrlindy on June 4, 2011 at 1:33am

Hi.  My husband is about to start is treatment w protopic...and now of course, I'm wondering if he should reconsider after reading the warnings on the package about risk of cancer/lymphoma.  ugh.

 

Also, if he does start..what's the best way?  I read somewhere that you should put it on, go out in sun for 10-15 minutes (that is what his dr recommended) and then wash it off?  or do you just leave it on...then reapply a second dose later in the day?

 

Thanks for any suggestions you have :)

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Replies

  • Mirjana Popovic June 11, 2011 at 7:18pm
    I used protopic few years ago and it didnt help me :( maybe i just didnt used it enough,anyway i tried vitix gel,also didnt help...my doctor said to me that there is not cure for that...do u guys know any other solution that could work??:)
    • Raj desai > Mirjana Popovic June 11, 2011 at 11:19pm

      there's a lot of very interesting results about v-tar

       

      • Idrlindy > Raj desai June 12, 2011 at 1:19am
        my husband is seeing some white patches turn pink -- does this mean his skin might be re-pigmenting?  Honestly he is having more success right now with the coconut oil than protopic...not sure if it's just reddish bec the skin is irritated or if color is returning??  What does it look like if skin starts to repigment?  Thanks!!
        • Nathan Yeti > Idrlindy July 1, 2011 at 11:12pm

          BIG "YES".  It is repigmenting.  We have 4 years of hands on experience on this.  Pink is good news !.  

           

          This tells us that, your husband's body is reacting.  CONTINUE with what you are doing.  Also, it appears that your husband is in initial stages.

           

          Keep faith in the medicine.  For example, a given small white spot could take 2 to 3 months for one person and easily, 9 months for a different person. This condition is so unpedictable. That is the main problem. 

           

          Good Luck.

        • Kelly Ryan > Idrlindy June 12, 2011 at 3:57am
          Some people say it does turn pink before it repigments. Is he only using coconut oil on the areas that are turning pink? Or is he applying protopic and coconut oil there?
          • Idrlindy > Kelly Ryan June 12, 2011 at 4:59am
            The areas that are turning pink -- only coconut oil.  He decided to experiment and use protopic only on his face...and coconut oil only on his hands/body.  To see if there's any different betw 2 treatments and the results he gets.  The areas with coconut oil -- 3 white patches are now red...2 are still white.  Face w protopic is basically the same....it did turn very red the other night, but that was after he drank about half a beer, LOL = no more alcohol for him (he was hoping somehow he could get around the no drinking...but now sees why the DR said "no alcohol"!)
            • Kelly Ryan > Idrlindy June 12, 2011 at 10:58am

              Very interesting. I tried doing some research on coconut oil and vitiligo and there is not too much information on it. However, there is a lot of info on coconut oil being anti fungal and how it is used in the treatment of tinea versicolor. Is it possible he has tinea versicolor or is it definitely vitiligo?

               

              Just curious but why did the doctor tell him to avoid alcohol is to for the vitiligo?

  • William M June 10, 2011 at 10:20am
    Thanks for the info., That is what I thought!
  • William M June 10, 2011 at 8:17am
    Marty, I am not sure but Protopic I believe doesn't work the same as your medicine. I believe it is more localized in working and one of the benefits of it is that it doesn't go into the bloodstream, but again not 100% sure!
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