Dear all,
I'm new on the forum. 34 year old with vitilgo since I was 10. After protopic during some years I only have vit on penis and perianal zone.
I visit my derm and he recommended to me NB UVB + protopic on this area as a new treatment, but looking into google I found that UVB could be dangerous, specially on penis.
Can anybody help me with this?
Thank!
Luis
Replies
I am using UVB comb at home, my Derm told Me 2min, but it's turning red, should I reduce the time
Hi friends again, here my update after 3 months of UVB+protopic+Pseudocatalase PCKUS
- Penis, 30 sec everyday after pseudocatalase in the evening + protopic after each session. I can see the progress from 10% to 15% aprox. Repigmentation areas are darkness than my normal colour but I hear that lather it become normal
- Perianal zone, some irritation on this area even with 30sec, but it is 50% repigmented or more, it is faster due to it is hairy area. Also very darkness!
-Lips, without progress on this area
@Flavio I also read a post from you:
"4- If you have an UVB-NB equipment, find out (or ask me) the real UVB-NB irradiation power. Pass the cream 2x a day ( in the morning and before bed). Only before bed, expose each patch to 250 milijoules of UVB-NB (short time). For example, if you have a 9W Philips bulb, it irradiates 1,13mw. So, you have to expose the patches for 250 / 1,13 = 220 seconds (each). Don't forget to wait 20 minutes after passing pseudocatalase cream. The skin needs time to absorb it. "
220 seconds everyday??? My derm recomended to me 30 sec and not go to pink color ... maybe it is less than needed?
Thanks in advance.
Luis
Exposure time is always a problem.
Start with 30s and increase 15s. See what happens 12 hours later.
Be in touch.
Hi Flavio,
Yes, always and I think a lot of dermatologist uses us as a "lab rabbits" LoL. I read there is 2 options:
1. UVB 3 times a week - time until you get pink.
2- UVB everyday - just 30 sec not to get pink.
Isn't it? I try the 1st one but I get burns on genital area so my derm move me to 2nd but I read your post and I was wonder if maybe his advice is good or not.
Yes. You are right.
But option 2 has to be done with a more powerful UVB-NB equipment. Usually a standup machine and also with pseudocatalase.
Really? I'm on 2nd option but I have a Dermalight 80 with a 9W Philips bulb... do you think 30 sec is not enough?
In your case, option 1 is recommended. 3x a week.
Remember that to achieve the pink color you will have to increase exposure time in steps. 10-15 seconds until it gets pinks. You will have to wait 12 hours (day after) to see the effect.
When you reach pink, keep the exposure time.
Remember to use templates.
Thanks Flavio, I will try very carefully ... you know ... sensitive area ;-)
Hello guys, here my update after 2 months of UVB+protopic and 1 month of UVB+Pseudocatalase PCKUS
- Penis, after some burns I just adjust the dose to 30 sec everyday after pseudocatalase in the evening. I can see the progress and I can say it is repigmented 10% - brown spots but becoming lager each day.
- Perianal zone, some burns become in anal fissure after the first month. so I need to stop UVB for one month and repig progress had stopped immediately but I need to cure the fissures, this is the first time I have this problem in my life, so I suppose that it is related with UVB. Now it is healing and started again with just 30 sec every day.
Advice! BE VERY CAREFULL on genital area,
-Lips, they start to repigment also from the edge of the lips to inside, still just the border .. I didnt see progress last weeks. Now in Brasil I apply Pseudo in the morning and get some sun and pseudo + UVB when I going to sleep.
Note:I still cannot say that Pseudo speed up the process compared with UVB + protopic.
I hope it helps!
Keep you updated
Feel free to ask me.
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