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MY VITILIGO EXPERIENCES (HAVE YOURS BEEN SIMILAR ?)

Posted by Carl R. Manley on February 4, 2010 at 11:34pm

Has a little child ever been frightened by your appearance because of your Vitiligo? and has someone ever looked at you with a look of horror on their face like they just saw a monster, Don't you hate negative responses like that from people when you go places, The childrens reactions don't bother me much because they are affraid of what they don't know,But these teenagers and grown ups who act like that, really make we want to say something negative to them which might lead to something like a physical altercation or something so most of the time I just ignore it, I used to hate going up too my teenages high school for after school meetings or teacher confrences because these damn high schoolers can act so ignorant towards us people with Vitiligo but once again I try not to pay it no mind because if I get mad or react I'm get arrested or locked up for choking out a ignorant kid in my own childs Jr. high or high school

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Replies

  • Mary-Ann February 9, 2010 at 4:49am
    hi

    I have the same problem, atleast i can use makeup on my face, but my hand still show, if they dont stare the people will just come up to me and asked if i burned and if it's painfull...... irritates the living daylights out of me
    • Carl R. Manley > Mary-Ann February 9, 2010 at 6:14am

      Mary Ann I get that too sometimes people ask me was I burned and I tell them no because If I was burned the skin would not be smooth

  • Hector February 7, 2010 at 1:37pm
    Ahahahaha, that's happened to me too. How I react varies enormously on my mood, sometimes I just stare back at the child for minutes, once I actually said "Boo!" to the poor creature, hilarious! Most of the time I just ignore them, only if they're schoolmates of my nephews I explain them what's vitiligo. Grown-up people staring has a lot to do with manners, not only ignorance. I've had a couple of times that I almost collide head-on with another person because they're so frigging lost in awe staring directly at me, next time I guess I'll do a swift turn and yell "Ole!" heh :D
  • josephine kabejja February 5, 2010 at 3:36am
    Yes sure my daughter once asked me why my lips are red and hers are not. Another shocking experience i got was from my mother in law when i paid her a vist,when she looked at me in a shock and instead of asking me what it was she called his son aside and asked whats wrong with that woman i think she has AIDS. because of those red lips. Then she demanded her son to do HIV TEST as soon as possible. My husband didn't tell what the mum had told him but the following day he said we need to do an HIV test then i said its ok but deep down i was suspicious though i stayed calm. After the test it came out negative but my mother in law couldn't believe and we did several tests and they turned up to be negative. So one day my mother in law consulted a doctor and the doctor explained to her what it is. Thats when she came back to me and apologised and i forgave her because i knew she was ignorant.
    .
    • Ogo Maduewesi > josephine kabejja February 6, 2010 at 5:42am
      Oh Josephine, she went that far? Really ignorance, these are things we have to face especially in Africa anything usnusual must be some deadly disease or even spiritual attack.

      Am so proud of you for forgiving her and your husband as well, its really not easy. I know of a man who letf the wife with three daughters saying that its nemesis, that she must have gotten involved with some fetish things with her mum and it resulted in the white patches.

      It all points to the fact that we have a whole lot of work to do in creating awareness on Vitiligo, we cant hold it against them because they are ignorant so we do our part by educating them.

      The Joy of the Lord is your Strength Josephine!!!

      Weldone
    • Carl R. Manley > josephine kabejja February 5, 2010 at 5:05pm
      Dear Josephine I'm sorry about your experience with your mother-in-law she was a very ignorant person for assuming that about you and it was very disrespectful, But at the same time people are affraid of what they don't know I had similar experiences when I told people that Vitiligo was a autoimmune disorder and soon as you start mentioning the immune system people automatically assume your talking about HIV or something and that can hurt a person on a emotional level, I hope you are doing a little better now and I hope you and your mother-in-law have a little better relationship now than how it was with those stupid assumptions!!!!

      Much Love and Respect Always
      Carl
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