So, I am a teenager and I am finally starting to except the fact that's its going to spread and get worse, but when I noticed all the spots on my back that I've never seen before I got upset. I just don't know how to deal with it spreading all over my body
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Since you are in the beginning stages of vitiligo it is easier to treat than someone that has had it for a long time. I've had vitiligo ever since I was borned and now I'm almost 40. Yes vitiligo has affected my life in many ways but it doesn't dictate my life. I'm not sure if you've looked at the treatments out there but there are options from using phototherapy to covering it. If your vitiligo is small the chances of curing it is high using narrowband uvb or excimer laser. If you want to cover it up there is a lotion called vitiligo cover lotion that is supposed to blend with your existing skin color.
Hi Hannah...I'm sorry this is difficult for you. I've had vitiligo all my life so it's been no big deal to me. When I was about 8 or 10 my step-mother gave me a bit of a complex saying I should go to the doctor and do something about it. So my mom took me and of course they couldn't do anything about it. Then I remember going to Cedar Point (huge amusement park) and we saw 2 young girls with blisters all over their bodies. My mom said it looked they had been burned probably in a house fire. My mom said "that didn't just happen recently"." They have been in pain a long time. What you have isn't painful". I never gave it another thought after that. I think it was how my family handled it too. Like it was no big deal. I've never had a boy refuse to kiss me either! I've had boyfriends and married and had kids. BTW I'm not on this site to GET support but to GIVE support. I hope this helped. Smile...you're beautiful! Jill
I know it sounds a bit redundant but try not to stress about the thought of new spots. For me, when I'm under high levels of stress is when I notice new ones. Which would add on to my worry. Your gorgeous regardless. A friend of mine says we're cheetahs gaining our spots. Which is now my motto.
Don't give up Hannah! I know it sounds like hollow advice, but our son was diagnosed in 2009 with severe vitiligo- more than 60% of his body and at the height it was up to 80%. I'm happy to tell you that he has been repigmentating over the last 3 years and we are thrilled. If you haven't been to a dermatologist GO! What I have learned as a parent is that you need to tell your Dr/derm what you know about vitiligo and what path you would like to take. Unfortunately Dr's know very little about vit and they don't like to admit it so they will "sell" you on just staying out of the sun and trying a topical steroid.
In short I tried to do the research for my Dr and she went along with most of my research and as she said "You can't argue with success" which is what we got with some supplements- mainly gingko biloba. Once we saw some improvement in about 3 months we BEGGED to try the UVB light treatments and that REALLY helped.
If you search my page you should be able to find the whole story and see some of the progress pictures I've posted. I hope it gives you some inspiration and remember you're not alone, You are a beautiful young lady and you have a lot of great things to look forward to- #1 on the list, kick vitiligo's butt! :)
A certain amount of acceptance is necessary...but by no means does this mean that you should sit back and watch the spots get worse without some sort of action plan. You need to see a derm that knows vitiligo and develop a treatment strategy : topical creams, vitamins, NUVB...there is lot to be tried.
..if u know how to get rid off this why don't u share it here..
I think they did right ...
Share it here n help the society...
U aren't selling any 'product ' to keep it secret....
No I am not keeping it secret. I want to help everybody. So here it goes:
"People in this world will try and make simple straight forward things complex to keep you confused and dependent on them so they can take advantage of you"
Malabsorption:
The protein molecules in food get partially broken down. These partially digested proteins can get through the wall of the gut and into the liver and circulatory systems. (this is explaining how food gets only partially digested)
What they (drs.) don't point out to us is that probably the biggest if not the primary cause of pathological antibodies in the body is due to the abnormal absorption through the gut of partially digested macromolecules from food. If the medical establishment pointed to hypochlorhydria in the stomach as the cause curative measures could be taken and millions of people spared a great deal of grief. As it stands the world goes on as it is and people are kept dumb and exploited.
I am not a dr. but what this means I think is that our body is so freaked out about this partially digested food in our systems and doesn't know what to do so it makes antibodies to protect us. Guess what the result of that it, vitiligo. About 95% of us vit sufferers are low in stomach acid. Do your research on low stomach acid (hypochlorhydria) and see what I am talking about.
So, all of us, try this:
1. Brewer's yeast
2. Whey powder (from grass fed cows)
3. Tyrosine pills
4. B vitamins (B-100 - Look for this)
5. HCI Betaine with pepsin (24% HCI)
6. Absorbic Acid
7. Folic Acid (sometimes folic will be in something else that you buy)
8. Liquid mineral drink (I can't remember what I have) (all the minerals)
Does everyone understand what is happening? There is a malabsorption problem with our bodies not getting the nutrients that everyone is getting from eating the same food and our bodies are producing spots from the lack. We all eat the same foods yet one get vit and the other doesn't. If they are any questions please write me here. I so want to help everyone. I still have vit because I just started this regime above but feel so good about what I am doing. It makes so much sense. IT IS NOT AN AUTOIMMUNE DISEASE! Sorry I am shouting but it says everywhere that it is. Let's all try this and see what happens in a month or two. We will all be repigmented and the Drs. won't make $$$$$$$$$$$$$$ on us anymore.
I also found out that it doesn't matter when you got vit it will repigment. Body is just waiting for the right nutrients finally to repigment. (fyi -I am a health and wellness business owner - bouldercolonicandmassage.com if you want to check me out.
Replies
Hi Hannah,
Since you are in the beginning stages of vitiligo it is easier to treat than someone that has had it for a long time. I've had vitiligo ever since I was borned and now I'm almost 40. Yes vitiligo has affected my life in many ways but it doesn't dictate my life. I'm not sure if you've looked at the treatments out there but there are options from using phototherapy to covering it. If your vitiligo is small the chances of curing it is high using narrowband uvb or excimer laser. If you want to cover it up there is a lotion called vitiligo cover lotion that is supposed to blend with your existing skin color.
Hi Hannah...I'm sorry this is difficult for you. I've had vitiligo all my life so it's been no big deal to me. When I was about 8 or 10 my step-mother gave me a bit of a complex saying I should go to the doctor and do something about it. So my mom took me and of course they couldn't do anything about it. Then I remember going to Cedar Point (huge amusement park) and we saw 2 young girls with blisters all over their bodies. My mom said it looked they had been burned probably in a house fire. My mom said "that didn't just happen recently"." They have been in pain a long time. What you have isn't painful". I never gave it another thought after that. I think it was how my family handled it too. Like it was no big deal. I've never had a boy refuse to kiss me either! I've had boyfriends and married and had kids. BTW I'm not on this site to GET support but to GIVE support. I hope this helped. Smile...you're beautiful! Jill
Very good to hear more success stories... My only issue with Gingko Biloba is http://well.blogs.nytimes.com/2013/04/29/new-doubts-about-ginkgo-bi...
I've heard similar things with other supplements, similar to taking too much folic acid causing other problems with health.
Don't give up Hannah! I know it sounds like hollow advice, but our son was diagnosed in 2009 with severe vitiligo- more than 60% of his body and at the height it was up to 80%. I'm happy to tell you that he has been repigmentating over the last 3 years and we are thrilled. If you haven't been to a dermatologist GO! What I have learned as a parent is that you need to tell your Dr/derm what you know about vitiligo and what path you would like to take. Unfortunately Dr's know very little about vit and they don't like to admit it so they will "sell" you on just staying out of the sun and trying a topical steroid.
In short I tried to do the research for my Dr and she went along with most of my research and as she said "You can't argue with success" which is what we got with some supplements- mainly gingko biloba. Once we saw some improvement in about 3 months we BEGGED to try the UVB light treatments and that REALLY helped.
If you search my page you should be able to find the whole story and see some of the progress pictures I've posted. I hope it gives you some inspiration and remember you're not alone, You are a beautiful young lady and you have a lot of great things to look forward to- #1 on the list, kick vitiligo's butt! :)
Take care!
yes.....hannah....same situation is wid me.....dnt knw hw n wat to do.....totaly scarrrrrd n fade up.....r u taking some treatment???
keep on finding the cures, thats the best you can do ! stay blessed :)
I agree with others.
A certain amount of acceptance is necessary...but by no means does this mean that you should sit back and watch the spots get worse without some sort of action plan. You need to see a derm that knows vitiligo and develop a treatment strategy : topical creams, vitamins, NUVB...there is lot to be tried.
I think they did right ...
Share it here n help the society...
U aren't selling any 'product ' to keep it secret....
No I am not keeping it secret. I want to help everybody. So here it goes:
"People in this world will try and make simple straight forward things complex to keep you confused and dependent on them so they can take advantage of you"
Malabsorption:
The protein molecules in food get partially broken down. These partially digested proteins can get through the wall of the gut and into the liver and circulatory systems. (this is explaining how food gets only partially digested)
What they (drs.) don't point out to us is that probably the biggest if not the primary cause of pathological antibodies in the body is due to the abnormal absorption through the gut of partially digested macromolecules from food. If the medical establishment pointed to hypochlorhydria in the stomach as the cause curative measures could be taken and millions of people spared a great deal of grief. As it stands the world goes on as it is and people are kept dumb and exploited.
I am not a dr. but what this means I think is that our body is so freaked out about this partially digested food in our systems and doesn't know what to do so it makes antibodies to protect us. Guess what the result of that it, vitiligo. About 95% of us vit sufferers are low in stomach acid. Do your research on low stomach acid (hypochlorhydria) and see what I am talking about.
So, all of us, try this:
1. Brewer's yeast
2. Whey powder (from grass fed cows)
3. Tyrosine pills
4. B vitamins (B-100 - Look for this)
5. HCI Betaine with pepsin (24% HCI)
6. Absorbic Acid
7. Folic Acid (sometimes folic will be in something else that you buy)
8. Liquid mineral drink (I can't remember what I have) (all the minerals)
Does everyone understand what is happening? There is a malabsorption problem with our bodies not getting the nutrients that everyone is getting from eating the same food and our bodies are producing spots from the lack. We all eat the same foods yet one get vit and the other doesn't. If they are any questions please write me here. I so want to help everyone. I still have vit because I just started this regime above but feel so good about what I am doing. It makes so much sense. IT IS NOT AN AUTOIMMUNE DISEASE! Sorry I am shouting but it says everywhere that it is. Let's all try this and see what happens in a month or two. We will all be repigmented and the Drs. won't make $$$$$$$$$$$$$$ on us anymore.
I also found out that it doesn't matter when you got vit it will repigment. Body is just waiting for the right nutrients finally to repigment. (fyi -I am a health and wellness business owner - bouldercolonicandmassage.com if you want to check me out.
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